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Dr. T. finds strep in Le Roy teens


Alex

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Did anyone see Dr Drew? Sigh.

 

The guy just can't get past Mechtler/Conversion Disorder and the environmental angles. And he gave so little time to what is really going on with these kids.

 

Also, someone needs to let Dr Drew know that PANS doesn't "predispose" kids to the tics/symptoms-- it CAUSES them!

 

And why would he say Dr T needs to collaborate with Mechtler? He's a dangerous lunatic, and his minion McVige just seems vacuous.

 

And to push that issue, the therapy they need (guess b/c he sees his profession at stake), that the docs should be collaborating (Mechtler, etc) and he totally shut down the parents when they were trying to talk about their kids' physical illnesses-- one of the girls had recurrent strep and got her tonsils out b/c of it, the other had mono within the past year-- and Drew defended Dent when the one Mom said she didn't know why Mechtler said he'd seen all of the girls b/c her daughter had never seen him in person-- he said, "Well, he meant his team had seen her..."

 

I'm sure he's just trying to stir *&%#! up for sensationalist TV reasons, but grrr and ugh. Tuning in to this travesty reminded me why I don't watch TV.

 

 

This was the first time I have seen Dr. Drew, and I have to say, that I was terribly disappointed by his piece. None of the lead-ins mentioned that Dr. T. had found strep and mycoP. I even said to DH that it looked like we had gotten it wrong...that Dr. T. was not going to be on.

 

Dr. Drew focused on the environmental piece (which is very possible that it is part of the cause,) definitely shut up the parents and the individual mom, and doesn't seem to get the fact that there's no collaboration, because DENT/aka Metchler has already professed that he's the greatest, knows what's wrong with these kids..."just by looking at them, because I'm a good neurologist," leaving nothing to collaborate about!

 

 

Very, very disappointing!

 

If only the parents would just wake up...start their kids on abx, and see what happens (I think the press at this point is dragging these parents now through the mud.) Parents of LeRoy kids...IF ANY OF YOU ARE READING THIS...START YOUR KIDS ON ABX, GET THE CONSULT FROM NIMH, GET YOURSELF HOOKED UP WITH ONE OF THE PANDAS SPECIALISTS, AND JOIN WITH US AND THE OTHER PARENTS OF THE OTHER PANS GROUPS AROUND TO FIGURE THIS WHOLE THING OUT!

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Below is the link to Drew show last night...

Dr. Drew muddles around suggesting collaboration of doc.s.../ hmmm... for whose sake? who is he kidding? that comment must have been spontaneous.

 

The PARENTS are wonderful on this clip--those moms come across as knowledgeable and concerned.

 

Dr. Trifiletti is well spoken, measured, careful in reply AS ALWAYS. He comes across as a thoughtful professional in the midst of this madness.

Well done Dr. T.

 

 

 

 

 

http://drdrew.blogs.cnn.com/2012/02/07/breaking-news-doctor-finds-pandas-connection-among-le-roy-teens/?hpt=dr_bn1

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Oh jeeze........Dr. Conversion disorder is at it again......

 

http://www.wgrz.com/news/article/153872/37/Doctor-Treating-Four-New-Cases-of-Conversion-Disorder-in-LeRoy

 

Now he's saying he saw a girl with just tics, which he said is not a conversion disorder.

 

And I won't even go into the "hysteria" means uterus, and young girls have a uterus, and blah blah blah.......

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This is Dr. T's press release. I am using it with my story to get some local news attention if possible

 

February 6, 2012

Press Release:

LE ROY, NY TEENS: BEHAVIORS LINKED TO INFECTIONS

Ramsey, NJ — February 6, 2012 — Rosario Trifiletti, MD has announced the results

of the laboratory data that he collected in standardized fashion from eight of nine girls he

examined in Le Roy, NY. National attention has been drawn to the plight of the teens who have

been unable to control various bodily twitching and jerking movements. Dr. Trifiletti reported

that five of eight girls show evidence of Streptococcus Pyogenes (common Group A strep) and

seven of eight show evidence of infection with Mycoplasma Pneumonia (the bacteria that causes

walking pneumonia). All eight girls tested show evidence of infection with at least one of those

pathogens. Both of these bacterium have been associated with a PANDAS-like illness of sudden

onset of motor and vocal tics. “A PANDAS-like illness is my working diagnosis, rather than a

mass conversion disorder as others have suggested,” said Dr. Trifiletti. He has already started

treating the girls with antibiotics and anti-inflammatory agents. When asked to comment on the

continued insistence by Dr. Laszlo Mechtler that the girls have conversion disorder (or mass

hysteria as Dr. Mechtler originally stated), Dr. Trifiletti said, “I'm confused by that because he's

never actually seen or interviewed any of the nine girls I examined.”

These findings provide a significant clue in the Le Roy High School mystery, but

certainly many questions remain. Streptococcus Pyogenes and Mycoplasma Pneumonia are

common pathogens that children throughout the world are exposed to every day. Why this town?

Why this particular child and not another? Why such a curious presentation resembling Tourette

syndrome? Until these questions are fully answered, the doctor said that the cluster will remain a

mystery. “I suspect that genetic, environmental factors provide an immune background where

the PANDAS-like response is possible to common pathogens. The infectious exposure is simply

'the straw that broke the camel’s back,'” said Trifiletti. However, the infectious exposure points

the way to rational medical treatment for these children, which he said is of immediate

importance. “Clearly, their response to the treatment I've started will be helpful in supporting my

working diagnosis,” he added.

As with most illnesses, Trifiletti said there is a complex interplay of genetic and

environmental factors involved. As with all illnesses, psychological factors possibly play some

role as well. “All we have done here is provided evidence for exposure to two infectious agents

as potential factors,” said Trifiletti. “I encourage efforts to further explore genetic and other

environmental factors that likely are playing an additional role here.”

To reach Dr. Trifiletti contact:

Telephone: 201-962-7284

Email: trifmd@gmail.com

Website: http://www.site.neurokidsr.us

For additional Information about PANDAS:

http://www.pandasfoundation.org

http://www.pandasnetwork.org

http://www.nimh.nih.gov/health/publications/pandas/pandas-frequently-asked-questionsabout-

pediatric-autoimmune-neuropsychiatric-disorders-associated-with-streptococcalinfections.

shtml

http://www.askdrsears.com/topics/childhood-illnesses/ocd

http://www.savingsammy.net

#########

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This is Dr. T's press release. I am using it with my story to get some local news attention if possible

 

February 6, 2012

Press Release:

LE ROY, NY TEENS: BEHAVIORS LINKED TO INFECTIONS

Ramsey, NJ — February 6, 2012 — Rosario Trifiletti, MD has announced the results

of the laboratory data that he collected in standardized fashion from eight of nine girls he

examined in Le Roy, NY. National attention has been drawn to the plight of the teens who have

been unable to control various bodily twitching and jerking movements. Dr. Trifiletti reported

that five of eight girls show evidence of Streptococcus Pyogenes (common Group A strep) and

seven of eight show evidence of infection with Mycoplasma Pneumonia (the bacteria that causes

walking pneumonia). All eight girls tested show evidence of infection with at least one of those

pathogens. Both of these bacterium have been associated with a PANDAS-like illness of sudden

onset of motor and vocal tics. “A PANDAS-like illness is my working diagnosis, rather than a

mass conversion disorder as others have suggested,” said Dr. Trifiletti. He has already started

treating the girls with antibiotics and anti-inflammatory agents. When asked to comment on the

continued insistence by Dr. Laszlo Mechtler that the girls have conversion disorder (or mass

hysteria as Dr. Mechtler originally stated), Dr. Trifiletti said, “I'm confused by that because he's

never actually seen or interviewed any of the nine girls I examined.”

These findings provide a significant clue in the Le Roy High School mystery, but

certainly many questions remain. Streptococcus Pyogenes and Mycoplasma Pneumonia are

common pathogens that children throughout the world are exposed to every day. Why this town?

Why this particular child and not another? Why such a curious presentation resembling Tourette

syndrome? Until these questions are fully answered, the doctor said that the cluster will remain a

mystery. “I suspect that genetic, environmental factors provide an immune background where

the PANDAS-like response is possible to common pathogens. The infectious exposure is simply

'the straw that broke the camel’s back,'” said Trifiletti. However, the infectious exposure points

the way to rational medical treatment for these children, which he said is of immediate

importance. “Clearly, their response to the treatment I've started will be helpful in supporting my

working diagnosis,” he added.

As with most illnesses, Trifiletti said there is a complex interplay of genetic and

environmental factors involved. As with all illnesses, psychological factors possibly play some

role as well. “All we have done here is provided evidence for exposure to two infectious agents

as potential factors,” said Trifiletti. “I encourage efforts to further explore genetic and other

environmental factors that likely are playing an additional role here.”

To reach Dr. Trifiletti contact:

Telephone: 201-962-7284

Email: trifmd@gmail.com

Website: http://www.site.neurokidsr.us

For additional Information about PANDAS:

http://www.pandasfoundation.org

http://www.pandasnetwork.org

http://www.nimh.nih.gov/health/publications/pandas/pandas-frequently-asked-questionsabout-

pediatric-autoimmune-neuropsychiatric-disorders-associated-with-streptococcalinfections.

shtml

http://www.askdrsears.com/topics/childhood-illnesses/ocd

http://www.savingsammy.net

#########

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Oh jeeze........Dr. Conversion disorder is at it again......

 

http://www.wgrz.com/news/article/153872/37/Doctor-Treating-Four-New-Cases-of-Conversion-Disorder-in-LeRoy

 

Now he's saying he saw a girl with just tics, which he said is not a conversion disorder.

 

And I won't even go into the "hysteria" means uterus, and young girls have a uterus, and blah blah blah.......

 

I think that article is a few days old (Feb 3)?

 

But yeah, blah blah blah.

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Did anyone see Dr Drew? Sigh.

 

The guy just can't get past Mechtler/Conversion Disorder and the environmental angles. And he gave so little time to what is really going on with these kids.

 

Also, someone needs to let Dr Drew know that PANS doesn't "predispose" kids to the tics/symptoms-- it CAUSES them!

 

And why would he say Dr T needs to collaborate with Mechtler? He's a dangerous lunatic, and his minion McVige just seems vacuous.

 

And to push that issue, the therapy they need (guess b/c he sees his profession at stake), that the docs should be collaborating (Mechtler, etc) and he totally shut down the parents when they were trying to talk about their kids' physical illnesses-- one of the girls had recurrent strep and got her tonsils out b/c of it, the other had mono within the past year-- and Drew defended Dent when the one Mom said she didn't know why Mechtler said he'd seen all of the girls b/c her daughter had never seen him in person-- he said, "Well, he meant his team had seen her..."

 

I'm sure he's just trying to stir *&%#! up for sensationalist TV reasons, but grrr and ugh. Tuning in to this travesty reminded me why I don't watch TV.

 

I've watched Dr. Drew most nights. It is very frustrating how attached to "conversion disorder" he is. One night he and Dr. Sharp spent the whole episode talking about how EASY it is to diagnose conversion disorder. They agreed with each other that all a good psychiatrist had to do was look at a patient to see conversion disorder! Granted, he is talking about and highlighting environmental and PANS possibilities, and thank god, giving air to Dr. T, but Dr. T's results are the ONLY actual medical results indicating a real reason this might be happening to these girls! Why so little air time to dr. t or to the possiblity of Pandas by Dr. Drew or any of the other media? I guess we have to remember Dr. Drew is a psychiatrist, and is definately going to defend his profession and everything he thought he knew. But it was maddening how, after the "moment of silence" he practically dressed down Dr. T for not collaborating with Mechtler! How could he expect him to when Dr. CD has been dissing Dr. T all over the media?!

Edited by HT's Mom
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