coco Posted January 19, 2012 Report Share Posted January 19, 2012 Talking about it on CNN shortly. Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 19, 2012 Report Share Posted January 19, 2012 The standard CNN channel? I've got the last half of "Anderson Cooper 360" on right now, followed by "Outfront" beginning at 10 CST. Is Gupta on AC? Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 19, 2012 Report Share Posted January 19, 2012 Oh yes! this is it! Anderson just announced it's coming up! Thanks! Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 19, 2012 Report Share Posted January 19, 2012 Oh geez, that ridiculous "conversion disorder" business again! Honestly . . . that's even LESS of a diagnosis than anything else I can think of! I just sent Anderson Cooper an email and told him he needs to talk to other people about what this mysterious LeRoy condition might actually be: Dr. T., Swedo, Cunningham, etc. Maybe he needs a few more emails! Whaddaya say, ladies (and gents)?! Link to comment Share on other sites More sharing options...
EAMom Posted January 19, 2012 Report Share Posted January 19, 2012 (edited) Oh geez, that ridiculous "conversion disorder" business again! Honestly . . . that's even LESS of a diagnosis than anything else I can think of! I just sent Anderson Cooper an email and told him he needs to talk to other people about what this mysterious LeRoy condition might actually be: Dr. T., Swedo, Cunningham, etc. Maybe he needs a few more emails! Whaddaya say, ladies (and gents)?! Was it just me, or did your guys get the feeling that Cooper and Gupta approached the "conversion disorder" diagnosis with a bit of skepticism? Gupta did explain that it was a "diagnosis of exclusion", a diagnosis you get to after ruling everything else out. I like that Gupta mentioned there may be other girls (beyond the 12) affected (perhaps with milder symptoms), that it may be more widespread. I was actually thinking the same thing, or that there may be girls with more psych. symptoms (anxiety/ocd) that are flying under the radar. I think the part where the mom talked about how when they first brought Thera in and the nurse said "something is going on, you are the 4th girl in this week with these symptoms", was interesting and made the 'mass hysteria' aspect of this(saying the girls were copying each other) seem a bit more absurd. It was mentioned that grades 8-12 were affected, that some of the girls were friends, but others didn't know each other. Unfortunately strep/pandas/sc was not mentioned. Oh, and gardasil was ruled out as not all the girls affected received the vaccine. Edited January 19, 2012 by EAMom Link to comment Share on other sites More sharing options...
AmySLP Posted January 19, 2012 Report Share Posted January 19, 2012 If you haven't already...read Lauren Johnson's mom post about Sanjay Gupta on their media experience. Link to comment Share on other sites More sharing options...
Iowadawn Posted January 19, 2012 Report Share Posted January 19, 2012 Gupta appears to practice at the same place that Dr. Mechtler practices-Dent Neuro Institute. Maybe this is "not news". he certainly will not go against what a colleague says. Just a thought. Dawn Link to comment Share on other sites More sharing options...
laurenjohnsonsmom Posted January 19, 2012 Report Share Posted January 19, 2012 If you haven't already...read Lauren Johnson's mom post about Sanjay Gupta on their media experience. My comment to Anderson Cooper/Sanjay Gupta.... "First the clueless psychiatrist on the Today show (where did you find her?) now AndersonCooper, tonight! Really Anderson? After Sanjay Gupta tells the world, two years ago, that my daughters overnight sneezing tic 25,000 a day is "psychosomatic" only to look like a fool when my daughter finds healing (and proper diagnosis) AFTER high dose antibiotics and IVIG you have him back on your show to do the same damage to these poor sick girls in Leroy, NY. SHAME ON YOU! There are infectious triggers causing these kids to be sick. we have had over 4,000 families reach out to our organization www.pandasresourcenetwork.org in the last two years who's children have found healing and it WASN'T through psychiatric treatment and psycho-tropic medication. WAKE UP!!! Please tell the WHOLE STORY!!! " I would LOVE to pull in Sanjays salary to pull BS straight out of my.... Link to comment Share on other sites More sharing options...
laurenjohnsonsmom Posted January 19, 2012 Report Share Posted January 19, 2012 Wondering with all the "HIIPA" cover-up why Sanjay gets to tell the whole world that he's confident Guardisil wasn't a factor because all the girls did not get vaccinated with it! Hmm...did somebody say something "he" shouldn't have??? Link to comment Share on other sites More sharing options...
tpotter Posted January 19, 2012 Report Share Posted January 19, 2012 How do you get hold of Gupta and Anderson Cooper to make comments? I can't figure out how to do it. I think we should all blast him with emails to contact Dr. C., Dr. Swedo (who may not be able to talk, because she's a government employeee...just a thought), Dr. L, Dr. B, etc. Maybe if we all bombard him, giving personal experience, he might actually do another report.. Perhaps there's a certain strain of strep OR, did everyone get A vaccine (any vaccine,) for instance, did some get flu/chicken pox booster, others get gardisil, etc. and then they all got exposed to strep, etc. My older DS became suicidal after getting the chicken pox/flu vaccines (that's when we found out he had PANS.) There's some major stuff going around this year. DS and I have been fighting off strep and mycoP since November (he's missed about 2 months of school.) Almost every one of my clients (children and families) have had strep, the stomach flu and/or pneumonia (I treat babies!!!), and I'm actually thinking of taking off a month or 2 to get over this thing. There's no way they've truly checked out the infection and/or infection/vaccine issue. And, mass hysteria/conversion disorder in which they ALL get the SAME SYMTPOMS is just ludicrous. Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 19, 2012 Report Share Posted January 19, 2012 How do you get hold of Gupta and Anderson Cooper to make comments? I can't figure out how to do it. I think we should all blast him with emails to contact Dr. C., Dr. Swedo (who may not be able to talk, because she's a government employeee...just a thought), Dr. L, Dr. B, etc. There's an "Email Us" link on the page, and you can write pretty much as you want to there (though I tried to keep it semi-short so it wouldn't be a burden for a first read). You're giving them your email address in return, so they can always contact you to follow up. Email Anderson Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 19, 2012 Report Share Posted January 19, 2012 There's also a "Comments" thread on the blog that might get some play if enough of us take the time to give them some input. Link to comment Share on other sites More sharing options...
peglem Posted January 19, 2012 Report Share Posted January 19, 2012 Anybody have a link? Link to comment Share on other sites More sharing options...
laurenjohnsonsmom Posted January 19, 2012 Report Share Posted January 19, 2012 Gupta works at the DENT institute with these other two docs. That are treating the Leroy girls no wonder he's sidding with them on the conversion theory. Grr... Link to comment Share on other sites More sharing options...
EAMom Posted January 19, 2012 Report Share Posted January 19, 2012 (edited) Gupta works at the DENT institute with these other two docs. That are treating the Leroy girls no wonder he's sidding with them on the conversion theory. Grr... Ahh, so now we know that not mentioning PANDAS/PANS/SC was quite deliberate. I also found this on Wikipedia http://en.wikipedia.org/wiki/Sanjay_Gupta : "Others have criticized Gupta's promotion of Merck's cervical cancer vaccine Gardasil, without disclosing the financial arrangements between CNN and Merck.[35]" How can we expect objective reporting when the reporter has ties to both Dent and Gardasil. No wonder he made a point to say Gardasil was not involved. Edited January 19, 2012 by EAMom Link to comment Share on other sites More sharing options...
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