Jump to content
ACN Latitudes Forums
  • ACN Premium Membership Free Trial

Sign in to follow this  

new diagnosis dysautonomia

Recommended Posts

Okay since i was last on here asking about LDA immunotherapy and ocd, my dgtr was in the hospital for 4 days. After MRI, EEG, etc she was diagnosed with dysautonomia. I have been wondering since dysautonomia can be triggered by an infection(strep) if others have children with it? she has gotten worse since immunotherapy and now is homebound cannot go to school. We have tried ssri's and have learned she can only take a small dose, cutting the smallest dose in 1/4 or 1/2. I saw an article on this site discussing this exact finding. Wow! any input, insight appreciated. She still has ocd however there are more worrisome symptoms now, like inability to stand for a short time, major fight or flight symptoms.


one last question are dilated pupils part of pandas? she gets this when she is feeling the worse, it is also a symptom of dysautonomia from adrenaline, which I guess Pandas could be a subgroup. Tilt testing found neurally mediated hypotension. I believe she has POTS - tachycardia being the reason for the hospitalization.





Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

  • Create New...