Dean1065 Posted January 11, 2012 Report Share Posted January 11, 2012 I see that the 8 year study that is supposed to give insight into the longer-term prognosis for PANDAS ended in May 2010. Does anyone know when this study is due to be published or why it has not been as yet? That seems like a long time to hold onto study results. http://www.clinicaltrials.gov/ct2/show/NCT00044239?term=Characterization+of+Childhood-Onset+Obsessive-Compulsive+Disorder&rank=1 Link to comment Share on other sites More sharing options...
norcalmom Posted January 12, 2012 Report Share Posted January 12, 2012 I found the same study about 2 years ago - before it "closed" and was never able to find an answer. If you look at the notes that you can link to, the only thing it says is that it was recruiting. Possibly it was recruiting for 8 years? LOL. I don't know if anything will every be published from it - but would love to find out. If you uncover anything please let us know! It says its being run by the NIMH, I'm going to sent it to a few people there and see if I get any reply. Link to comment Share on other sites More sharing options...
thereishope Posted January 12, 2012 Report Share Posted January 12, 2012 (edited) . Edited September 30, 2019 by Vickie Link to comment Share on other sites More sharing options...
norcalmom Posted January 12, 2012 Report Share Posted January 12, 2012 I listen to that (again) and see what she says. I sent her an email, there were number of things the study looks at, and would like to see if anything was published, or will be published. If anyone re-listens to the koffee klatch, and Swedo mentions the name of the researcher that ran this study, we might have more luck contacting that person directly (if it wasn't swedo herself) Link to comment Share on other sites More sharing options...
Dean1065 Posted January 12, 2012 Author Report Share Posted January 12, 2012 I just saw this statement at the bottom of the web page: "ClinicalTrials.gov processed this record on January 11, 2012." I wonder what that means? Link to comment Share on other sites More sharing options...
thereishope Posted January 12, 2012 Report Share Posted January 12, 2012 (edited) . Edited September 30, 2019 by Vickie Link to comment Share on other sites More sharing options...
kimballot Posted January 12, 2012 Report Share Posted January 12, 2012 If you click on "history of changes" in the upper right corner and search around - it looks like the study ended in May of 2010. Perhaps we will still see results published at some point?? Link to comment Share on other sites More sharing options...
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