joshuasmissingpeace Posted December 13, 2011 Report Share Posted December 13, 2011 Just a note of encouragment to hang in there. We did 3 hd ivigs starting a year and a half ago. We went from an angry, anorexic, OCD, vocal tourettes, hallucinating insomniac to a sweet little boy after 2 1/2 years of ######. He is on prophylactic antibiotics and fish oil but doing great...not perfect..but great. He is 20# heavier, sleeps like a baby and is in a typical small school (where he is comfortable telling his friends about PANDAS) I never thought we would find him again. Hang in there, they can get better. Link to comment Share on other sites More sharing options...
Chemar Posted December 13, 2011 Report Share Posted December 13, 2011 bumping up so others see this Just a note of encouragment to hang in there. We did 3 hd ivigs starting a year and a half ago. We went from an angry, anorexic, OCD, vocal tourettes, hallucinating insomniac to a sweet little boy after 2 1/2 years of ######. He is on prophylactic antibiotics and fish oil but doing great...not perfect..but great. He is 20# heavier, sleeps like a baby and is in a typical small school (where he is comfortable telling his friends about PANDAS) I never thought we would find him again. Hang in there, they can get better. Link to comment Share on other sites More sharing options...
bigmighty Posted December 13, 2011 Report Share Posted December 13, 2011 Glad to hear the good news. Can you tell us, please, what his main symptoms were and what recovery process was like? Did you do CBT/ERP? Thanks for posting. Best, Suzanne Link to comment Share on other sites More sharing options...
missjo Posted December 13, 2011 Report Share Posted December 13, 2011 How old is your son? When do you feel he first developed Pandas? Link to comment Share on other sites More sharing options...
Pandasmex Posted December 14, 2011 Report Share Posted December 14, 2011 Great news!!! Specially during this time of the year....thanks for share. Link to comment Share on other sites More sharing options...
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