missjo Posted December 9, 2011 Report Share Posted December 9, 2011 My 16YO PANDAS son has been hospitalized since Tuesday because of dehydration and weight loss. He has been throwing up everything even water for 11days. This is not stomach virus throwing up. It is more as soon as it goes in it comes back involuntarily. They cannot find any physical reason after all of the testing. The only conclusion is that it is mental because of the PANDAS as he has had eating OCD's in the past. We went to DR. L last week and had immediate IVIG and changed antibiotics. Unfortunately we have not been able to speak to her since. All of his treatment has been directed by a GI doctor at our local hospital in Southeastern VA. They have inserted a NG Tube and are feeding him Pediasure. When he work up from anethesia yesterday with a feeding tube he hated it, got mad and said I will not let anything I eat or drink come back out of my mouth, has been able to keep food and water from physically coming out of his mouth by concentrating on each bite and reswallowing anything that does come up. This keeping the food-in seems more defiant than determination to get better. He wants to go home and wants NG tube out and he knows they only way is to show them he can keep food down. They are planning on sending him home tomorrow with NG feeds. My worry is he will stop holding the food down and return to letting it out, once we get out of the hospital. Does anyone have any thoughts on Rumination Syndrome I have lots of calls into eating disorder people but its Friday. It is hard to find a eating disorder person who knows anything about PANDAS. I don't know where to turn. We are in Southeastern VA if that helps. Thanks Melissa Link to comment Share on other sites More sharing options...
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