lynn Posted November 30, 2011 Report Share Posted November 30, 2011 I'm looking for a DAN Dr since nothing is helping and DS is in difficulties. I saw that Dr Neubrander is taking PANDAs patients (he usually is Autism based) Does anyone have any experience (or alternatives?) PM if needed! Thanks everyone! Lynn Link to comment Share on other sites More sharing options...
coco Posted November 30, 2011 Report Share Posted November 30, 2011 Run from this man as fast as possible. Greatest charlatan of them all. Pm me if you'd like. Link to comment Share on other sites More sharing options...
SSS Posted November 30, 2011 Report Share Posted November 30, 2011 His assistant, Scott Smith, handles PANDAS. There are several Moms who have been helped tremendously by SS. He also has his own infusion center. I telephoned consulted with him, and got very good advice, IMO. Link to comment Share on other sites More sharing options...
KaraD Posted December 18, 2011 Report Share Posted December 18, 2011 We love Scott Smith. He's helped my son tremendously. Link to comment Share on other sites More sharing options...
Ann280 Posted December 18, 2011 Report Share Posted December 18, 2011 We love Scott Smith. He's helped my son tremendously. Hi we see Scott smith as well for our daughter...I was looking to connect with some other moms using him for support. I have an 11 year old with pandas diagnosed a year ago. We live near basking ridge. Link to comment Share on other sites More sharing options...
Ann280 Posted December 18, 2011 Report Share Posted December 18, 2011 Run from this man as fast as possible. Greatest charlatan of them all. Pm me if you'd like. Hi may I ask why? I know the office staff is not all together at times ,but I'm wondering more about your comment and are you referring to his associate as well Scott smith? Thanks Link to comment Share on other sites More sharing options...
KaraD Posted December 19, 2011 Report Share Posted December 19, 2011 Ann, We actually travel from Arkansas to see Scott, so I probably can't be much support IRL, but I'm happy to email My son is 5. Link to comment Share on other sites More sharing options...
Burnell Posted December 20, 2011 Report Share Posted December 20, 2011 We started seeing Scott in September 2011. Have any of you done more than the deitary changes such as no diary and being on methel-folate? Link to comment Share on other sites More sharing options...
Ann280 Posted December 20, 2011 Report Share Posted December 20, 2011 We started seeing Scott in September 2011. Have any of you done more than the deitary changes such as no diary and being on methel-folate? My 11 yr daughter sees Scott..we haven't done any dietary changes other than add vitamins to her diet.. Magnesium ,taurine, DHA, vit D. What dairy changes? Link to comment Share on other sites More sharing options...
KaraD Posted December 21, 2011 Report Share Posted December 21, 2011 We started seeing Scott in September 2011. Have any of you done more than the deitary changes such as no diary and being on methel-folate? We have. We came to Scott already gluten free, casein free, egg free and yeast free based on IgE/IgG results and Enterolab testing. He ran the Quadros test and when it came back positive added 5MTHF to our supplement list. He's added several others as well. I love that he can articulate the rationale behind each supplement decision we make. He is also very open for me to research and discuss options with me. He is super-smart, and I consider him the most important and most helpful practioner that is treating my son. My 11 yr daughter sees Scott..we haven't done any dietary changes other than add vitamins to her diet.. Magnesium ,taurine, DHA, vit D. What dairy changes? Ann, there is another clustering autoimmune condition in the brain where the body produces autoantibodies to the folate receptors. This makes it hard for the body to process folic acid and dairy exacerbates the condition. HTH, Kara Link to comment Share on other sites More sharing options...
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