mtmom Posted November 18, 2011 Report Share Posted November 18, 2011 We are still waiting for improvements after 5 weeks IVIG. We see nothing but more and more PANDAS symptoms. I miss my little boy. Link to comment Share on other sites More sharing options...
Rain Posted November 18, 2011 Report Share Posted November 18, 2011 I'm so sorry to hear that. Don't lose hope, we saw nothing until about week 8 post IVIg - and he started a dramatic improvement. Now we're at week 12 and having a little backslide this week. I know it's not easy, but hang in there. Link to comment Share on other sites More sharing options...
kimballot Posted November 18, 2011 Report Share Posted November 18, 2011 We are still waiting for improvements after 5 weeks IVIG. We see nothing but more and more PANDAS symptoms. I miss my little boy. My son did not do well after IVIG initially. He started doing better when we changed his antibiotics. In our case, a lyme doctor helped us with antibiotics, but his immunologist also agreed with the change. Is you child on antibiotics? Link to comment Share on other sites More sharing options...
mtmom Posted November 20, 2011 Author Report Share Posted November 20, 2011 Thanks for the hopeful posts. It can be so discouraging. My son is on a low dose of Zith. I am worried though because we have had illness (virus) in the house. the doctor says it is flipping but what if it is a PANDAS flare up. How are you suppose to now the difference? Link to comment Share on other sites More sharing options...
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