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  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

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danddd

igenex results in

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so dd10's results came back, clearly positive for lyme and bartonella. switching abx for a while, before considering more ivig. little sis came along for the ride, and doc took her on as patient also, giving lab orders (for lyme and co infections), and finding a sinus infection! thanks all, for drilling about infections, we found them. what a day!

 

dan

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I think that this is great news because our experience has been that lyme treatment has been key to our healing process when multiple IVIG's were not maintaining a sustained benefit. We even quit the IVIG's in order to give the body a chance to fight lyme on its own and to avoid suppressing the immune system.

 

I think that Dr. K recommends getting rid of all chronic infections before doing high dose IVIG's.

 

I highly recommend a skilled LLMD because, as you know, lyme often comes with multiple coinfections that are difficult to detect and difficult to treat.

 

I hope that the multiple antibiotic combo gives your daughter some relief. We did see herxing, in terms of increased PANDAS symptoms, when adding in new antibiotics.

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yes, we had very similar experience with both of dd's ivig's. they helped greatly, but then she would go downhill again. so, no ivig's for now at least. i am worried about herxing, hope it is not too much of a nightmare!

 

thanks

dan

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