MomWithOCDSon Posted November 10, 2011 Report Share Posted November 10, 2011 Sorry, Melanie. Hang in there! Hugs! Link to comment Share on other sites More sharing options...
philamom Posted November 10, 2011 Report Share Posted November 10, 2011 But sooo brave and strong! I hope his day gets better. Is tomorrow the last day of treatment? Hang in there! Link to comment Share on other sites More sharing options...
melanie Posted November 10, 2011 Author Report Share Posted November 10, 2011 Saturday. 5 treatments total. Just finished #3. He's cranky and ticckkkyyy. Never got a treatment Monday. Link to comment Share on other sites More sharing options...
melanie Posted November 10, 2011 Author Report Share Posted November 10, 2011 Saturday. 5 treatments total. Just finished #3. He's cranky and ticckkkyyy. Never got a treatment Monday. Link to comment Share on other sites More sharing options...
peglem Posted November 10, 2011 Report Share Posted November 10, 2011 Do you think he's cranky because of the medical effects of the treatment, or just because he's bored and tired of being there? Link to comment Share on other sites More sharing options...
melanie Posted November 10, 2011 Author Report Share Posted November 10, 2011 Probably a little of both.he was being interviewed by some DES on camera today. He ticked like crazy. F b hitler stuff which I haven't heard in a long long time. I know he's agitated. I am so he must be nits inside. Do you get worse before better with PEX? He is due for ivig tomorrow. Maybe he needs that. I don't know. But I'm discouraged right now. Melanie Link to comment Share on other sites More sharing options...
tpotter Posted November 10, 2011 Report Share Posted November 10, 2011 Probably a little of both.he was being interviewed by some DES on camera today. He ticked like crazy. F b hitler stuff which I haven't heard in a long long time. I know he's agitated. I am so he must be nits inside. Do you get worse before better with PEX? He is due for ivig tomorrow. Maybe he needs that. I don't know. But I'm discouraged right now. Melanie Tics got so bad after we got home that he had to make 2 trips to the ER. Then, one day...about 1 month later, they were just gone (now they come back mildly when he's sick, but so far not anywhere near as badly.) Hang in there. Maybe herxing. Link to comment Share on other sites More sharing options...
melanie Posted November 11, 2011 Author Report Share Posted November 11, 2011 Well #4 done. Seems ok. Dr told me we are going to continue ivig. Not to expect anything can take 4 weks to see any results. Melan Link to comment Share on other sites More sharing options...
melanie Posted November 12, 2011 Author Report Share Posted November 12, 2011 Last one today. He's hooked up. I'll keep everyone up on the progress. Hope there is progress. Melanie Link to comment Share on other sites More sharing options...
melanie Posted November 15, 2011 Author Report Share Posted November 15, 2011 Hi I cant really say things are getting better yet,Actually he has been pretty angry. I dont know if this is normal or if my expectations are to high Melanie Link to comment Share on other sites More sharing options...
peglem Posted November 21, 2011 Report Share Posted November 21, 2011 Mel, how are you guys doing? Link to comment Share on other sites More sharing options...
melanie Posted November 21, 2011 Author Report Share Posted November 21, 2011 Hi peg. I was going to post tonight. He's been doing pretty good. He's having some iPod issues so that always throws him off. It should be fixed tonight so i will watch closely. He's been getting through things more quickly. Not sure if it's just a coincidence nothing wonderful. Write more later. Link to comment Share on other sites More sharing options...
melanie Posted November 29, 2011 Author Report Share Posted November 29, 2011 Saw the Dr yesterday for follow up He said he sees danny alot calmer not as anxious.I agree He is calmer gets through things a bit quicker than befor PEX. He is still getting IVIG ever 21 days samme dosage .60 grams. We are 2 weeks into it and DR says we should still see more results soon. BUT HE WILL PROBABLY WANT TO DO THE PEX AGAIN!!!!! I almost fell off the chair UGHH I didnt tell danny He will check him agin in Feb 2012 and then tell us what to do..I hope to see more good stuff Tics are still there not as bad but he really hasnt been stressed to much. Hard to tell with danny sometimes I think I just get usto his behaviors and am looking for good stuff all the time Melanie Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now