BoyIowa Posted October 26, 2011 Report Share Posted October 26, 2011 I have been reading so many intersting things on this forum about different tests, numerous treatments, food avoidances, vitamin supplements, etc. I feel overwhelmed. Just when I think that I have all of the pieces to the puzzle, I think 'maybe there is another one that I might be missing'. I am working with a ped on our path to discovery and treatment. We are using resources and recommendations of other physicians and research studies. We are on abx augmentin and zith. I would like to request from our ped to have some additonal blood work done. We had the ASO, Anti-Dnase tests run - PANDAS and we had Lyme test done - positive. I would welcome any ideas on recommended tests that would enlighten us on what could be contributing to the symptoms - tics, OCD, anxiety, fidgetty, difficulty falling asleep, achy back, hyperactivity, has to touch everything, inattentivenesss (He doesn't have all of them all of the time, so I think we might be missing something). I would also welcome any at-home 'treatments' that we could try to help with the symptoms. Link to comment Share on other sites More sharing options...
trggirl Posted October 26, 2011 Report Share Posted October 26, 2011 Boylowa, Check out Chemar's story if you haven't already. She has used natural products with great success and her posts have so much information. She has a link at the bottom of her posts that tell about her son's journey. Link to comment Share on other sites More sharing options...
mama2alex Posted October 28, 2011 Report Share Posted October 28, 2011 Since he tested positive for Lyme, you might want to check out the Lyme and Related Diseases Forum on here. Other "pieces of the puzzle" often discussed over there include KPU, mold, viruses, vitamin D, EMFs, biofilms, Babesia, Bartonella, mycoplasma and probably other things I'm forgeting. Most of our kids also have PANDAS, or were originally diagnosed with it, so you will find relevant info there. Link to comment Share on other sites More sharing options...
BoyIowa Posted October 31, 2011 Author Report Share Posted October 31, 2011 We have our doc ordering more testing!! Link to comment Share on other sites More sharing options...
saidie10 Posted October 31, 2011 Report Share Posted October 31, 2011 You can also get some good information from the Great Pains OATS test and the NeuroScience Neurotransmitter Profile. These are very easy at home urine collection kits that you send off. They will give you a good luck at gut and nutritional health, along with the current Neurotransmitter levels (dopamine, seratonine, etc.) These are all important to look at when you are trying to put all the puzzle pieces together. We are about to do food allergy testing as well and this can be done in conjunction with the Great Plains OATS test. Good luck! Cindy Link to comment Share on other sites More sharing options...
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