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Anorexia...Treatment


Jtsmama
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Well Jt's Mama-

 

PEX is hard to get. There are likely two docs that will do it; one in Philly, on in DC. We had it done, and had to pay in full up front- that cost was $26k (we did eventually get insurance covg).

 

Other parents here can give you a closer estimate for IVIG, but I would budget $10k

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Dr T seems to think PEX would be covered because he is so severe. I reminded him that JT was Immunodeficient and already receives IgSc, he said that should be covered as well. I am praying so! I am a broke single Mom, the least out of pocket for me, the better!

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Per Dr T, started 10 days of Clindamyacin today! Hoping this is a start of something good. Son was asleep by 930, can't remember the last time that happened! My Neuro in Fl was onboard enough to rewrite the abx so ins wld pay. Discussed Pex and Ivig, gonna be major reaction issues, have to figure out how to deal with those before doing.

 

Have any of you had the Pex and gotten insurance to pay, if so what and how do you bill it? Same with HdIvig?

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