Jump to content
ACN Latitudes Forums

PANDAS and rheumatic heart disease


Kiera

Recommended Posts

Just wondering for those of you who've seen the expert PANDAS Drs, with initial visit, do they have your child checked for effects on the heart? Is it common to have rheumatic heart affects as well as brain affects? Is it part of an initial evaluation to check for strep effects there? Thanks.

Link to comment
Share on other sites

My daughter saw Dr. Latimer initially & we were set up with her colleague the day after (b/c we were in town from NY)to r/o RF. Her biggest concern was that we believe my daughter went at least 2 months with undiagnosed strep based on her med history. Didn't sound like this was routine at the time (that was 3 yrs ago) & fortunately my daughter's heart was unaffected.

 

Amy

Link to comment
Share on other sites

in our office where we've seen around 15 -20 pandas kids this past year, we haven't found rheumatic heart disease in a single one. i was thinking about that recently. we were originally worried about that with my son's PANDAS because one of his pediatricians thought he heard a heart murmur but his heart is fine and no one else ever heard the murmur. i wonder also about potential kidney damage that can come from rheumatic fever, but haven't seen that either, except one person.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...