Topaz1968 Posted September 15, 2011 Author Report Share Posted September 15, 2011 topaz....i am curious about being diagnosed with TS AND Pandas. I would say my dd has tourette's and some ocd, based on symptoms....she has many tics and some ocd, hyper, etc. But the onset was likely after infections (many since a baby, and many untreated for years)....ocd age 4.5ish, for a couple years, then explosion of tics after a fever last (2010) summer. She has not stopped ticcing since. But I am told it's pandas. So if it's TS, you basically treat with tenex, clonidine, etc., but if it's pandas, you need to knock out infection or calm autoimmune stuff. Did Dr. B diagnose both of those? Well, he was diagnosed with TS after having tics for over a year, that started in first grade. The problem is, I don't remember him having strep anytime right before then. Anyway, I brought him to a neurologist who diagnosed with the TS, but it was fairly mild at that point and would come and go. Pandas will still very new, so my Pediatrician did suggest ABX, but he was only on them for about 10 days. It did not do anything to help. My father is an immunologist and a friend of his told him about the Pandas. That is when I found Dr. B. We are lucky to live only about 1/2 hour away and after my son had blood work done, the strep titers were through the roof. The neurologist still calls it TS and Dr. B says it is not TS. His tics never go away completely - so I am not sure what to think. It is kind of a guessing game as far as I am concerned. We did try Tenex, but it did not work, so we decided not to go the route of medication for right now and see what happens. He is still on ABX, and we are going to see Dr. B in a couple weeks - so hopefully he can give us some more suggestions. Link to comment Share on other sites More sharing options...
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