Christianmom Posted September 3, 2011 Report Share Posted September 3, 2011 I had a talk with my son last night, trying to figure this whole thing out, and asked him if there had been any good days or bad days that I had missed since he has been on lyme treatment. He said he hadn't noticed any particularly good or bad days since on the lyme treatment but said that by far his best day was about the 14th day after a 100 mg., 10-day prednisone burst (that he had done a couple of months before lyme treatment). I was floored by this as I had forgotten. He couldn't believe I had forgotten becaue it was so memorable to him in terms of improvement. Basically it was only 1 day of improvement and that day we were at a friend's house most of the day. He did do exceptionally well, but I just attributed it to the fact that these were special friends that he didn't get to see much. Anyway, my friend asked him to play the piano that day--something very difficult because it sets off his OCD. He got up and played a classical song from memory beautifully without missing a beat. You would have never known he was sick. He told me last night that on this "best" day, he had very little trouble taking a shower--something that is always an issue normally. He said that is what he saw as the biggest improvement. My son has been on prednisone three times--60 mg. 5-day prednisone burst, 30-day taper (can't remember the dosage), and this 100 mg. 10-day burst that I just described. He did well on the 5-day burst for 2 days, had no change (but no regression either) on the 30-day taper, and did well on the 10-day burst ("the best" as my son describes) for 1 day. My question is, isn't this a possible indication that my son may not have lyme as he does well on prednisone, even at a whopping dose of 100 mg. Thank you all for your treasured opinions! Link to comment Share on other sites More sharing options...
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