T_Mom Posted July 12, 2011 Report Share Posted July 12, 2011 Does anyone know if Dr K does a second IVIG (or more?) and how long after the first? Link to comment Share on other sites More sharing options...
nicklemama Posted July 12, 2011 Report Share Posted July 12, 2011 Dr K does do a second IVIG, if needed. I do not know the spacing. I believe its on an as needed basis, as judged by Dr K. Link to comment Share on other sites More sharing options...
T_Mom Posted July 13, 2011 Author Report Share Posted July 13, 2011 Thanks nicklemama-- Link to comment Share on other sites More sharing options...
Worried_Dad Posted July 13, 2011 Report Share Posted July 13, 2011 Yep - our ds had 3 rounds of IVIG with Dr. K. Ds did very well for 2-3 months after round 1, then another infection sent him downhill. Dr. K recommended another round... but we wasted months trying to get a local doc to order it locally in-network. (Couldn't afford to pay up-front again at the time.) Long, bizarre story - 2 local docs agreed to order it, then reneged - and after another horrible exacerbation, we did 2 more rounds 28 days apart (because things were really grim and Dr. K wanted to "knock the PANDAS out"). So we did 1st round in Oct 2008, waited too long, but then did 2 more rounds in June and July 2009. From what Dr. K said, he often sees older kids (> 10) need a 2nd round but will go to additional rounds if warranted, based on patient's condition and response. Good luck! Link to comment Share on other sites More sharing options...
Mary M Posted July 15, 2011 Report Share Posted July 15, 2011 Our dd has had 2 IVIgs with Dr K. Mary from Michigan Link to comment Share on other sites More sharing options...
T_Mom Posted July 18, 2011 Author Report Share Posted July 18, 2011 Thanks for the info.--We are seeing saw tooth recovery (we believe) in our youngest d (11) now 9 weeks post IVIG. Very thankful for the calming of her rages, etc. This is the most amazing thing--to see a child go from raging ODD/OCD to relatively "normal" again...with ups and downs certainly, but she is so much better than she was pre-IVIG it is incredible. Thanks again for the input. Link to comment Share on other sites More sharing options...
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