Pediatrician says kids are fine......

[Kbossman1]

Ok, I am sitting here trying to figure out which way to go next.....do we pack up the car and take all kiddos out of state to see a dr....to be sure that every dr here in NC can't be that stupid....or can they? Here's what I'm dealing with: mycoplasma tests from labcorp taken 6/20/11 dd6 Igm negative IgG 1659

dd5 IgM 1861 IgG 424

ds4 IgM 987 IgG 562

Me IgM negative IgG 2205

IgM is positive if over 770 IgG normal is 0-100

So, basically you know, and I know, that we all have mycoplasma pnuemoniae.....but so far, 2 of the pediatricans that we've seen don't want to treat. PANDAS dd is not terrible, but not great either, and my hubby and I are guessing it's b/c she lives with all of this freaking mycop?!! Well, any new dr that we go see will probably not want to treat b/c they dont' know us?? I'm not sure which way to go. Must come up with a plan and do something...I guess? The pediatrican says that the kids don't have any symptoms...our specialist is probably a quack, and she suggested that I find a good therapist for myself b/c I'm trying to harm my children with antibiotics....really....that was said....to my face. It all just blows my mind!

I'm taking suggestions.....so please, feel free. I am also appalled at the dr's behavior, and I have been drafting some hate mail to send her....but this won't help the situation any. Thanks for any advice!

[tpotter]

First of all, you are not crazy. Secondly, MycoP is highly contageous, and it is very important that you get it treated. I would suggest that you see if you can find a pulmonologist or lung specialist in your area who specializes in mycoP (specifically ask that.) Tell them that the IgM is elevated, and IgG (they are typically more concerned about the IgM, but may be concerned about the IgG, too.)

 

My IgM was 1750, and I was very sick for 3 years, with unremitting asthma. No one could figure out why nothing seemed to work (when it would get bad enough, I had figured out that azith was the only thing that helped, plus I had the "cough."), yet no one knew enough to suspect mycoP. In the meantime, I exposed my entire family, and many patients (as soon as I found out, I found replacements for my sickest of patients, and since then I have also heard of several children that I treated or were in their families that have symptoms that may very well be mycoP (I told their mother's to tell the dr. that they were exposed to it, and to specifically have it tested for.)

 

It was Dr. B. who found the mycoP when he was testing the whole family. He started the tx, we are all now being treated for Lyme, and I have just started seeing a lung specialist at a local hospital with a specialty lung department, because even after extensive treatment for the past 11 months, I am still symptomatic (not as bad, but I want to make certain that I don't have permanent lung damage and/or something else.

 

And, of course, the MycoP didn't help my PANDAS/Lyme kids either, which I know is the case with yours, too.

 

 

Trudy

[beeskneesmommy]

Kelly - I have not been to him, but several moms I know, including moms who have kids with concerns, have been very impressed with Dr. Artman. He is with an office in Cary, but they just opened or are in process of opening an office here in Holly Springs on 55. I also know another mom in Raleigh who has kids with Myco PANDAS and she loves Artman's associate. Contact me directly for more info, as I have had experience with the associate doc. I am so sorry that you are having this issue - been there and done that, unfortunately. Hang in there!!

-Kath

Edited July 6, 2011 by Beeskneesmommy