Jump to content
ACN Latitudes Forums
  • Trigger-Book-Horizontal-png

Sign in to follow this  
mommyof2

checking in

Recommended Posts

It has been awhile since I posted...i come back and read periodically but wanted to post a positive. My son, turned 13 in Feb., is doing wonderful at the time. He is taking 25mg of topamax which if things continue as they are I may consider to go down to 15 mg or take him off. He started with the ortho. last summer and i was worried things might get worse with teeth being pulled and jaw movements, but they haven't. I mentioned to our ortho. about Dr. Stacks and the jaw associations with Tics. He actually went to school with Dr. Stacks and our ortho is very familiar and treats TMJ. He put a herbst appliance in my sons mouth to pull his lower jaw forward. In a month that will be taken out.

Also last summer we did have a big flare up on his tics, as we had the summer before. I was thinking it could have an association with chlorine in the pool. This summer we put a salt system in our intex pool but he does still swim occasionally in my parents chlorine pool. He has a few tiny unnoticable tics, such as an eyebrow lift but it is barely noticable to others just to a watchful mom.

I am hoping that he is beginning to grow out of them, as my pediatrician assures me he will :) but I was not a believer. It is so nice to have a nice relaxing summer with the kids.

Just wanted to let you know how things are...I am seeing a light at the end of this long tunnel.

mary

Share this post


Link to post
Share on other sites

It has been awhile since I posted...i come back and read periodically but wanted to post a positive. My son, turned 13 in Feb., is doing wonderful at the time. He is taking 25mg of topamax which if things continue as they are I may consider to go down to 15 mg or take him off. He started with the ortho. last summer and i was worried things might get worse with teeth being pulled and jaw movements, but they haven't. I mentioned to our ortho. about Dr. Stacks and the jaw associations with Tics. He actually went to school with Dr. Stacks and our ortho is very familiar and treats TMJ. He put a herbst appliance in my sons mouth to pull his lower jaw forward. In a month that will be taken out.

Also last summer we did have a big flare up on his tics, as we had the summer before. I was thinking it could have an association with chlorine in the pool. This summer we put a salt system in our intex pool but he does still swim occasionally in my parents chlorine pool. He has a few tiny unnoticable tics, such as an eyebrow lift but it is barely noticable to others just to a watchful mom.

I am hoping that he is beginning to grow out of them, as my pediatrician assures me he will :) but I was not a believer. It is so nice to have a nice relaxing summer with the kids.

Just wanted to let you know how things are...I am seeing a light at the end of this long tunnel.

mary

 

Hi Mary

So glad to hear things are going so well. Just wanted to know how long your son has been on Topamax and if you do any diet/allergy elimination? My son has been on Topamax since October. Did really great on the 25 mg then it stopped. We upped it to 50mg and then had him allergy tested. He showed a sensitivity to dairy. Took him off dairy and in about 2 months we saw a reduction in the tics. Not sure if it is the topamax or the diet but I am too afraid at this point to change anything to find out. He still has a few tics now and again like your son but he is in a much better place. If you do decide to reduce the topamax please keep us imformed. Wishing you continued good health :)

 

Leslie

Share this post


Link to post
Share on other sites

He was on topamax since January 2009 and we have not really done much with dietary elimations other than watching red40 in his diet as well as not alot of soda. Last summer he had a flare up and we upped his dosage to as much as 75 mg but only for a week or so, once i saw it did not diminsh the tics he went back down to the 25mg.

 

Trg girl...I do not notice alot in focus problem...he had gotten honors all 4 quarters last year.

 

Mary

Share this post


Link to post
Share on other sites

Hi

I have not posted in awhile either. Anthony is doing very well on Topamax 25mg twice a day and Augmentin 500mg twice a day. Pretty much tic free except for small ones that only a mom would pick up on. I guess I am wondering when do you start weaning. and if on antibiotics which one would you wean first? glad to hear everyone is doing well

 

Deanna

Share this post


Link to post
Share on other sites

It is always so encouraging to see positive outcomes as this journey can be discouraging at times with all of the unknowns. Those of you who mentioned that your kids are on Topamax - are you seeing many side effects from the medication?

Share this post


Link to post
Share on other sites

We have not had any side effects from topamax other than dry eyes- sometimes a little sore. I researched this and apparently this can be helped by drinking more water. I am going to make sure he drinks water even when he is not thirsty. No cognitive difficulties at all- like Mary my son has been straight A's honors courses. We initially tried Tenex but that was a disaster- did nothing for the tics actually think it made it worse and the anxiety was horrible.

 

Leslie

Share this post


Link to post
Share on other sites

I Have not seen any--thats a good time

 

Deanna

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...