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mary

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Hi Mary:

 

Just read your posting and first I would like to recommend for you to see a pediatric neurologist and see what they tell you. They may just tell you what they told me about my daughter she started back in May of this year with a cute humming sound and four months later she is doing three other tics. Its very frustrating and scary at the same time. On her first neurogoly appointment they recommend some medication that I refused to give her. They also told me that becuase with tics they cannot be determined over a matter of months the child must have the symptoms for a year or more to be diagnoised with an actual disorder or even Tourette Syndrome which is the umbrella condition for all the other little symptoms. I am now seeking a second opinion next week hopefully they can give me some answers on how to help her and some suggestions on natural medicine which is something I am considering. I hope this may help you, be strong for your child and if theres anything questions please feel free to ask, This website is great to help you and others as well.

ER

New YOrk :P

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Mary, (nursepatti & evelyn too)

 

Glad you found this site. I believe you will find a wealth of information here to help your son. I feel most Ped. Neurologists are good at ruling out things like seizure disorders, but may have very little experience with anything but using perscription drugs to treat tics/TS. I have found vitamins supplements, fish oil, diet changes, digestive enzymes to be VERY beneficial for my sons, and others here have found various alternative treatments to be superior to drugs also.

Everyone has to weigh all of the alternatives and decide what they feel is best for their child.

 

A poster here recently gave these links to someone on another board. I actually found there is a new Alternative MD about 3 miles from my home on this list (thanks Carolyn and glad to see your post on biochat!)

 

DAN (Defeat Autism Now) Doctor: http://www.autismwebsite.com/ari-lists/danus.html

American College For Advancement in Medicine: www.acam.org

American Academy of Environemental Medicine: www.aaem.com

 

I think the more posts you read, and the more you realise how vast your options are for exploring the improvement of your sons tics if they continue to be bothersome, the better you will feel. One of the things that was so upsetting to me was the fear of progression and helplessness. Helpless is the last thing I feel now, thanks to the wonderful sharing of information.

 

It might help if you could explain a little more about your son's situation. Is there a family history of tics, recent steph infection, repeated antibiotic use, allergies, ADD, ADHA, obvious digestion problems, sleeping issues, food cravings or avoidance? Anything you can think of, even if it doesn't seem related to his tics, might be helpful (one of my sons had red, hot ears mostly at night and got to sleep waaaay too late. I thought it was my fault for being ineffective at enforcing bedtime rules).

 

Anyway, welcome, and know there are some really wonderful people here that will help in any way they can! :P

 

Kim

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Thanks evelyn and kim for info.

 

I'm really interested in the alternative med for my son. He's 9 yrs. old. I would not put him on meds for what he is doing now. My husband has TS and he's one of the cases where we can't trace it in his family, not that really matters anyway. I do have my son on Omega-3 vitamins and I'm looking to see what else I can do. He does have seasonal allergies and other than that he's your typical energetic boy. He does not do any vocal tics. Do I just seek an alternative doctor?

Thanks for you help.

Mary

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Hi Mary and welcome

 

if your husband has TS then there is a very real possibility that your son has inherited the genetic disposition for TS.

 

There are however many ways in which you can help to minimize his tics etc (and maybe help your husband too) without resorting to the strong prescription meds, which frequently have side effects that can be worse than the tics ever could be!)

 

As Kim has pointed out, it is a good idea to find a doctor familiar with treating TS, tics etc in more natural ways. The best doctors in my opinion are Integrative physicians, who are fully qualified in conventional medicine but have gone on to specialise in complimentary aka alternative medicine. The DAN doctors also fall into this group.

 

My son has TS, inherited from my husband. When it first manifested as diagnosable tics around his 10th birthday, it was very severe, and we did try medications for a year with detrimental side effects and not much help for his tics or OCD

Then we switched to an alternative approach and it was nothing short of miraculous to see the rapid and dramatic improvement in his symptoms. He is now almost 16 and his tics are so mild that most folks dont even know he has TS. For many people, the tics do naturally taper down once the early teenage years are past, but for my son, the improvement was immediate back when he was younger and so we have no doubt that the natural treatments helped him dramatically.

 

I have put together a thread on what we did to help him, which I am linking here, and also bumping up for you.

You may get some ideas from it to be able to discuss with a good doctor, and of course we are all here to help wherever we can from our own experience.

 

There is a wealth of info here from many members of our community who have had remarkable results in using these alternative methods to help there children, so I urge you to work your way (slowly) thru the pages of this forum and ask wherever you need clarification. It can seem overwhelming at first, but soon you will have a wealth of valuable info and so be able to work in partnership with a good physician to help your child.

 

Here is that thread

http://www.latitudes.org/forums/index.php?showtopic=687

 

Do remember that people with TS tic....that is a fact and in the words of a friend from another forum "It's OK to tic!"....your child should never feel that there is something wrong with them for ticcing...they are still your same precious child wiuth all the talents and abilities God blessed them with.

It is just when the tics cause either physical debilitation or social impairment or a problem for the person that one seeks to mimimise their impact.

That is where the alternative treatments play such a special role!

 

Here also is a very good website on TS in general

http://www.tourettesyndrome.net

 

 

all the best to you

:P

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Thank you Chemar for your info. At first its very overwhelming you don't know where to start. But I guess the first thing I have to do is find an alternative dr. If anyone has had any success in the NY/NJ area please let me know. Thanks again for the info and I will keep you informed.

Mary

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