tiffany_v Posted June 18, 2011 Report Share Posted June 18, 2011 Hello all! So Isaiah has his first doctors appt coming up in about a week and a half. This will be the first time we've seen the dr. since the initial diagnosis a couple of weeks ago. Is there anything we should expect or ask for? Our ped. is brand new to this and has asked for me to bring in information that I have found regarding PANDAS, so that makes me a bit nervous, however I am happy he is willing to work with us and treat Isaiah. But since both he and I are new to this, I thought I may turn to you experts to see if there were things I need to be asking for (certain blood tests, referrals to specialist, family testing for carriers, long term abx, ect.). As of tomorrow Isaiah will have been on his abx for 2 weeks, and is doing very well! Our ped did call in a new prescription for us to continue while we are on vacation (we leave in the morning for 9 days) so that Isaiah can "hopefully" enjoy himself. Some of his biggest anxieties have been airplanes and 'carnival' rides, we are flying to southern California (from Washington state) and visiting theme parks including Disneyland,so that makes ME nervous, however he is doing well this week and does not seem as nervous, the abx have helped with many of his symptoms thankfully! Although today his symptoms were more noticable, which I am sure has to do with the trip. If anyone can offer me and advice/insight I would greatly appreciate it! I will hopefully have wireless at our hotel to check and respond this weekend/week! Thank you all again for welcoming me into this group, I don't know where I'd be without it and all of you!! Tiffany Link to comment Share on other sites More sharing options...
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