MEDS

[cab40]

Hello,

 

If Dr directed? Any that should not be?

Edited March 23, 2012 by cab40

[cab40]

I can only tell you my experience- I was on abx for 14 years (low dose prophylactic)- they never once became ineffective. If you treat the infection that's causing the problem and then follow it with immunomodulatory treatments (IVIG/PEX) symptoms should disappear. Perhaps your son has an active infection and the bacteria became resistant to the antibiotic since he was on it for so long. Or maybe your son is immunodeficient and can't get rid of an infection.

[cab40]

thanks!

Edited March 23, 2012 by cab40

[LNN]

I know some parents with ASD kids may see this thread and be able to offer better insight regarding Pandas v. ASD. But as for your question about pill form v. liquid, I'm not sure the amount of clav acid is going to make much difference. If anything, I might try a different abx altogether. And remember to give a decent probiotic, at least 2 hours away from the augmentin, to protect against c. diff and yeast.

 

I agree with Pandas 16 that in classic Pandas, once the infection is cleared, you should see a resolution of symptoms as time goes on. When you don't, it's wise to rule out other chronic infections, such as mycoplasma, lyme, bartonella, other tick borne illnesses, sinus infections... Your child may not have strep, but that doesn't mean he doesn't have Pitands and an ongoing infection which isn't being eradicated by augmentin. You say his symptoms have been building since he was 5. But if he had a normal toddlerhood, I'd think that would make an ASD diagnosis at age 8 more of a label for "we don't know what else to call this set of symptoms" rather than an early developmental disorder that was just missed for 8 years. But again, I leave it to the expert parents to chime in.

 

(BTW - if you do decide to switch abx and see a change for the worse when you first start, that could be a sign that there is indeed a chronic infection and you're seeing something called a "herxheimer" response, which is ironically a "good" sign).

[formedbrds]

Some tablets that are not scored can be split. The question to ask the pharmacist is whether or not it can be crushed. If the answer is yes, then you can split the tablet.

[peglem]

I just wanted to add-as far as the ASD- IMHO, if PANDAS strikes during critical periods of social/emotional/language development and is not treated quickly enough, it can mess up development in those areas so that even when the PANDAS is successfully treated (the cause for the lack of development is ameliorated) the child still is lacking in development in those areas=developmental delays=ASD.

[peglem]

I just wanted to add-as far as the ASD- IMHO, if PANDAS strikes during critical periods of social/emotional/language development and is not treated quickly enough, it can mess up development in those areas so that even when the PANDAS is successfully treated (the cause for the lack of development is ameliorated) the child still is lacking in development in those areas=developmental delays=ASD.

 

 

Are you implying that undiagnosed PANDAS is really autism?

No, just that I think untreated PANDAS during infancy and early childhood development can pervert normal development (because normal information processing is disrupted) causing the symptoms that are labeled as autism. And treatment for PANDAS cannot restore development that never occurred in the 1st place, even if the reason for the lack of development is removed. When a child gets PANDAS after completing early childhood development you'd expect treatment to restored a normal developmental level. But if the child was untreated throughout the developmental years, you wouldn't expect treatment to make them developmentally normal.

 

This is what occurred with my daughter (we think-hindsight being what it is). So its not enough for us to just treat "residual OCD" because she doesn't have anything to replace it with. We have to work on social/emotional development because it fell victim to PANDAS.