formedbrds Posted May 13, 2011 Report Share Posted May 13, 2011 (edited) [q Edited July 16, 2011 by formedbrds Link to comment Share on other sites More sharing options...
Fixit Posted May 18, 2011 Report Share Posted May 18, 2011 pandas16..did you leave?? i wanted to ask about..doxycycline to reduce glutamate and an article by momaine on the lymes board stating... Studies in cell culture suggest that curcumin can increase cellular glutathione levels by enhancing the transcription of genes that encode GCL (20, 21). maybe someone else has thoughts on using the 2 together? haven't posted in a while..but ds is probalby 5ish..pain keeps is higher sometimes. He is using both of the above. i'm glad this thread got going. i had asked about it before but no one had experience i guess...so glad this looks plausable. a lady on another doc's site is the only other one i've seen who responded with tso in reagards to pandas. Link to comment Share on other sites More sharing options...
Ebony Posted October 18, 2011 Report Share Posted October 18, 2011 (edited) OK Pandas people My ds 17 is doing fantastic on TSO therapy. Ds started the treatment only 3 months ago and he is still at only half of his targeted dosage which is 2500 but his constant gut problems ( allergies---known and unknown--- causing skin rash, gas, diarrhea ) gone. OCD is minimum. Expensive but worth every penny. We are planning to stay on with it. Do you think the TSO tx is helping his gut problems? How much does it cost? I'm wondering if a lower dose would be needed for milder cases (eg PANDAS) vs. kids with full-blown autism? Hello EAmom I do not remember exactly how much it was for a bottle of 2500 unit but I believe it was around $400 a bottle. My son is an adult male in weight and size so he would need maximum dose which is 2500 in every 2 weeks. He is currently taking only half of it and it already made a huge differences. My son had a long history of gut problems and nothing ever helped except TSO so I definitely think it is worth a try. My son is not autistic or severe pandas and I don't think it has anything to do with dosage of TSO. One's weight and size is what counts here. You start TSO in a small amount, probably in 100 units and then in 2 weeks, you go into 200 units, and then to 300 in another 2 week and so on until you reach your targeted dose. I do not know what your dd's targeted dose might be but you can figure it out as you move up the dose a little by little in evdery 2 weeks. ( Dr. Lin suggested that my son may have to go to full dose but he left it to me to figure it out) I think I am going to have my ds stay on at 1250 for next several months as it is already doing a fantastic job. ( My son weights 165 pounds ---maybe your dd needs half of my son's ?) TSO was making differences in my son by around 3rd weeks. ( 650 units) You buy a one bottle of 2500 units and it will give you enough amount to see if it is working for your child. EAmom, you helped my family so much when we first came to this forum looking for answers and I am very grateful. pathfinder Hi, I found your posts regarding allergy improvement with ds very interesting. I hope he is doing well? I am considering TSO for multiple food allergies. I was interested in what you said about the dosage. I am highly sensitive and of small build so think I will need to build up like your son did. When I looked on the ordering site it says the lowest dose to order is 500 TSO. But I would like to start on a lower dose. How did you manage to do this? Do you know if once opened the entire amount needs to be taken? As on the ordering site it says ‘After agitating the vial properly drink it immediately’ so I wasn’t sure if it could be kept. Any information would be gratefully received. Kind Regards Edited October 18, 2011 by Ebony Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now