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someone mentioned that the steroid burst brought on their child's period, and things got worse when the period came. not sure if i have this exactly right. i am thinking of just going right 4 the ivig and forgetting the steroid blast. i was going to run this by dr. B, but was wondering if anyone ever spoke about this to him and what his feeling was. thanks

Posted

someone mentioned that the steroid burst brought on their child's period, and things got worse when the period came. not sure if i have this exactly right. i am thinking of just going right 4 the ivig and forgetting the steroid blast. i was going to run this by dr. B, but was wondering if anyone ever spoke about this to him and what his feeling was. thanks

I don't think menstruation made my daughter worse- but, we did not really have meaningful treatment until that 1st steroid burst, either. The menstrual cycle w/ hormone fluctuations does add another variable to figure out- ie..is it a PANDAS flare, or PMS, or??

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