Jump to content
ACN Latitudes Forums

Recommended Posts

Doc thought she would be up to at least 80% at this visit. She had been progressing rather quickly begining with the prednisone and abx in Dec. Untill last visit when he changed the abx and added another round of pred. She flew backwards and he was concerned and ordered Igenex, and put her on Aug.

So, now I'm left wondering Pandas, lyme, both? I guess we will find out eventually. I have read up on the lyme, it scares the bejeepers out of me more so than Pandas. I really don't want to have to go down that path. I also read the Cure Unknown...funny, I picked it up right before our trip to the docs and when I read it, I thought to myself,boy that sounds alot like me. So of course, that alone had my mind racing, now I'm wondering if the kid has it and if she got it from me.

I'm glad we got the Augmentim, thats what I was hoping for, I never dreamt that he would bring up the lyme.

 

Jodi

Link to post
Share on other sites

I am glad that you are checking for Lyme. I found out my kids have it and most likely got it from me. I thought it was just PANDAS but as it turns out it is several different 'bugs'. It was crazy because my one son was like the walking definition of PANDAS - as classic as they come. I feel the same way as you do about the whole Lyme and tick born illness world! I have told many people that PANDAS scared me but Lyme (and company) terrifies me!!! Please know that so many of these kids that have not properly responded or have not stayed well are coming up with TBI's. The majority of these kids are improving drastically on Lyme treatment. One of my boys is 6 months in to treatment and has greatly improved!! My most severe boy is refusing treatment but I pray to get him on board and give him his life back soon. Hang in there!

Edited by dabel
Link to post
Share on other sites

I am glad that you are checking for Lyme. I found out my kids have it and most likely got it from me. I thought it was just PANDAS but as it turns out it is several different 'bugs'. It was crazy because my one son was like the walking definition of PANDAS - as classic as they come. I feel the same way as you do about the whole Lyme and tick born illness world! I have told many people that PANDAS scared me but Lyme (and company) terrifies me!!! Please know that so many of these kids that have not properly responded or have not stayed well are coming up with TBI's. The majority of these kids are improving drastically on Lyme treatment. One of my boys is 6 months in to treatment and has greatly improved!! My most severe boy is refusing treatment but I pray to get him on board and give him his life back soon. Hang in there!

 

I hope your son does get treatment. Whatever it is, I'm just praying to get my child well. (Like everyone else) It has been 7months since this kid has been in school, played with a friend or anything. Contamination fears suck because it emcompasses every single thing. Her biggest fear is one little girl who goes to her school is contaminated...hence, the school, kids, busses, pencils etc are all contaminated. Since she has flown backwards, instead of an 11yr old it is like having a frightened 4yr old. and I want to cry everytime I see or hear it. For her loneliness, sadness, and frustration at not being able to do hardly anything. she can't even walk outside into her yard without feeling contaminated. I know, we are all there but I just want to go foreward and gain some sort of life for her. did'nt mean for this to turn into a whinning post....I tend to do that alot. lol

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...