GraceUnderPressure Posted February 25, 2011 Report Share Posted February 25, 2011 Got the results of our full panel of Lyme tests done by Igenex: Immunofluorescence Assay (IFA) 40 EQUIVOCAL IgM Western Blot 39+, 41+, 83-93 IND [Positive by both Igenex & CDC standards] IgG Western Blot 30+, 31 IND, 34 IND, 41+++, 58+, 83-93 + [Positive by Igenex; Negative by CDC] PCR Serum Genomic - Negative Plasmid - Positive Confirmed by Southern Dot Blot PCR Whole Blood Genomic - Negative Plasmid - Negative Who wants to be first to say 'told you so'? To think we almost didn't bother! So what do I do now? We're in anti-LLMD Texas & the 7 yr journey just to get to this point has exhausted most of our money - we can't afford to go to CT & poor Dr. Jones doesn't sound like he needs anymore cases (besides my ds is turning 19 in 2 mos & Jones is a pedi)! I think my brain is hyper-ventilating over here!!! Link to comment Share on other sites More sharing options...
dabel Posted February 25, 2011 Report Share Posted February 25, 2011 WOW! One kid after another here! I was not on the forum much when all the Lyme stuff hit. My kid was doing good at the time (didn't last) and we were living. So, I have no idea how the whole Lyme ball started rolling on here. I have heard that it ruffled a few feathers. I have to say thank goodness that issue came up because look at all the kids who are going to get the proper treatment now - my kids included. I am sorry that your child is positive but happy for both of you that now you know what you are dealing with and can get rid of it!! Link to comment Share on other sites More sharing options...
Tamistwins Posted February 25, 2011 Report Share Posted February 25, 2011 I am sorry for your positive result but glad you found what's wrong. We too are positive. Just saw dr. J and he treats pediatric and adolescent. I met a family in the waiting room where he was treating everyone including the parents. Good luck! Link to comment Share on other sites More sharing options...
lss Posted February 25, 2011 Report Share Posted February 25, 2011 Got the results of our full panel of Lyme tests done by Igenex: Immunofluorescence Assay (IFA) 40 EQUIVOCAL IgM Western Blot 39+, 41+, 83-93 IND [Positive by both Igenex & CDC standards] IgG Western Blot 30+, 31 IND, 34 IND, 41+++, 58+, 83-93 + [Positive by Igenex; Negative by CDC] PCR Serum Genomic - Negative Plasmid - Positive Confirmed by Southern Dot Blot PCR Whole Blood Genomic - Negative Plasmid - Negative Who wants to be first to say 'told you so'? To think we almost didn't bother! So what do I do now? We're in anti-LLMD Texas & the 7 yr journey just to get to this point has exhausted most of our money - we can't afford to go to CT & poor Dr. Jones doesn't sound like he needs anymore cases (besides my ds is turning 19 in 2 mos & Jones is a pedi)! I think my brain is hyper-ventilating over here!!! Grace, I will pm you some info. Linda Link to comment Share on other sites More sharing options...
sf_mom Posted February 25, 2011 Report Share Posted February 25, 2011 (edited) I am so sorry for the diagnoses but there is true healing ahead with the right Dr. Unfortunately, nobody knew a year ago that Lyme could present identical to PANDAS inclusive of strep trigger. What we have come to learn is these kids thought to be PANDAS kids often have Multiple Chronic Infections and not just strep or Lyme. With a good LLMD you'll be able to peel back the layers of chronic infection eliminating one infection at a time turning down and eventually off the hyper immune response by the body. My best recommendation is to find the closest most affordable LLMD - ILADS trained Dr. and be in front of or talking to that Dr. every six weeks until you gain confidence in the recovery process. You will need to check and watch for co-infections. AND, you will also you need to learn about Detox, Detox, Detox. Living bacterias produce endotoxins. When bacterias are killed they produce exotoxins. Endotoxin/exotoxins cause inflammation and symptoms. If you help the body to eliminate toxins you'll have less symptoms and the body will not be as taxed due to overload of toxins. We have some great Dr.'s a little closer to you than Jones if you are willing to travel. Wishing you all the best as you begin this journey of understanding and recovery. -Wendy Edited February 25, 2011 by SF Mom Link to comment Share on other sites More sharing options...
GraceUnderPressure Posted February 26, 2011 Author Report Share Posted February 26, 2011 Tami, how long did you have to wait for that first appt? Link to comment Share on other sites More sharing options...
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