Normal anti-neuronal titers

[SSS]

Hi- I've read quite a few back posts on these (Buster's a certified genius) but if anyone has any comment, I would so appreciate it--

 

DD5's CamK score 175.

Just got back the 2nd part of the test- everything was smack in normal range, the only thing 'outstanding', I guess, was

Anti-Dopamine 1

Normal range 500-2000

Normal mean- 1056

DD5's - 2000

 

So even that is in range.

Any thoughts? Thank you!

Edited February 18, 2011 by S & S

[texascatholic]

Actually, my DD9 had that as her dopamine1 score and I was told by Dr. Cunningham that it was considered high because it was almost twice the normal mean. Does your child have a lot of OCD? Mine does and apparently the dopamine1 score correlates with OCD.

 

God bless!

[SSS]

YES, she does have a lot of OCD.

 

Thank you :-)

[eljomom]

Funny---my dd7 has a lot of tics (some ocd) and hers was 4000! Dr. L said its not surprising that she has so many tics with that one.

[Fixit]

Ditto..first draw..ds dope 1 =2000

second draw=4000 ithink...

doc said same and 2000 is high...my ds pretty strictly a ticcer

[SSS]

This is interesting.

We don't have 'standard' tics, but breakdowns/rages where she loses control of her body- hitting, kicking, spitting, the light swearing over and over (can't remember medical term for this) at age 5, it is: you're stupid! you're rude! Stupid!

:-(

[KaraM]

I never quite understood exactly what all those meant either, but I have to tell you my dd7's (now 8) results were almost identical. CamK was 189. All the rest normal range, but Anti-Dop1 was 2000 - so Dr. C had pointed that out as elevated on the results as well. Her primary symptoms is OCD as well. She also had rages and ADHD like behavior.

[trggirl]

Hi, our Camkinase was 237 and all my daughter's antineuronal antibodies were right in the middle of the normal range. I also called Dr. Cunningham and she brought up the possiblilty that there might be another antibody that she was not testing which was high. I just wanted to throw that out there for thought.

Edited February 19, 2011 by Trg girl

[momaine]

I can't add anything but I do have a question. We had not done this test in the past due to money and it not making a difference in treatment for my dd, but Dr. J had us participate in the study. It takes a while to get it back but I was wondering if having been on antibiotics for a long time change the outcome of the test? My dd was not in a horrible place when the blood was drawn, but certainly not normal either. She had been on Zith and Augmentin for more than a year. Will that affect the test?

[LNN]

We just tested my daughter, who had started zith a week before the test. My son had also been on and off abx frequently for 10 months before he was tested 2 yrs ago. Kathy said that abx do not alter the results.

 

(tho it stands to reason that if abx bring your child off the rafters and into a calmer place, then in a sense, they do alter the results by calming everything down - but in and of themselves, if you test when your child is not in a good place, then taking abx or not will not change the answer as to whether your child's symptoms are auto-immune related).