Jump to content
ACN Latitudes Forums
Phasmid

If you are a strep "carrier" do you have symptoms?

Recommended Posts

We suspect I was/may still be a carrier. Rapid tested, cultured, & blood tested positive for fourteen years with NO symptoms 80%+ of the time. If you were a strep carrier & felt symptoms, that would be awful!

Share this post


Link to post
Share on other sites

I think my daughter was a carrier. She had symptoms when she was younger, but was never tested for strep at that time. By the time she was tested for strep (years after symptoms went away), she was symptom free and did not have elevated titers. But she consistently had positive throat swabs 3-5days after finishing a course of abx for @ 2 years. Once on prophylactic abx we did not test as often- but when she had a bad, bad flare- then I'd bring her in and she'd test positive. I was always so sure that we were done w/ strep once we'd gone prophyl that I only tested when I'd bring her in for other things- like injuries sustained while raging! In hindsight, I should have realized!

Share this post


Link to post
Share on other sites

In our office, we routinely test all family members for strep who have not been tested yet.

have found one mom with positive strep in the throat, no symptoms.

one dad with high aso, no symptoms.

Share this post


Link to post
Share on other sites

Our DS is/was a carrier. For years, he would bring letters home from school announcing that another child in his class had been identified with strep, and that we should keep an eye out for sore throat and/or fever.

 

DS, however, never got either a sore throat or a fever. But within 7 to 10 days, either DH or I would come down with classic strep throat.

 

We had DS swabbed a couple of times, trying to tie his OCD to strep exposure, but the cultures always came back negative, and since he didn't show any other physical signs of having contracted it, we couldn't get the pediatrician to treat him. It wasn't until after reading "Saving Sammy" that I pushed for ASO and AntiDnase B blood tests. By the time we got to that point, NONE of us in the family had had any active strep infections for more than a year, but DS's titers were five times the high end of the lab's normal range.

 

So, yes, I do think carriers CAN have elevated titers, but I don't know if they necessarily do, especially during the period in which they are contagious in the classic sense.

Share this post


Link to post
Share on other sites

None of our family ever had classic strep throat symptoms or a positive throat culture, but all of us had elevated ASO. Interestingly, after abx treatment (augmentin XR for PANDAS ds, clindamycin for the rest of us), all of our ASO levels came down. So - to a layman - that seems to indicate that we indeed had active strep infections despite no standard symptoms / immune response.

 

Unfortunately, many docs don't agree. Our youngest's ASO came down from 597 to 254 after a month of clindamycin, has now spiked back up to 499 after confirmed cases of strep at daycare. Our family doc decided he can no longer prescribe abx for this because a local infectious disease specialist (who declined to see any of us as patients) told him that "it's a mistake to chase the titers." So they told us to bring our youngest in if he complains of a sore throat and they'll do a culture; otherwise, no abx.

 

So I'd say a lot of ID docs still believe that high titers or a "carrier state" are benign in the absence of classic strep throat symptoms, even for a PANDAS family. Argh....

Share this post


Link to post
Share on other sites

I was told today that it would be wise to get everyone who lives here swabbed, cultured, and titers pulled on all.

Ugghhh, I am so overwhelmed right now.

Share this post


Link to post
Share on other sites

Try not to feel overwhelmed. Just start with the most basic testing..a rapid and culture. Some say skip the rapid, I say do it since if that's positive, you get antibiotics faster. My kids don't get symptoms of strep,yet they have tested positive of rapids and cultures before. But my kids are not carriers, they clear on a regular 10 day script and do not continuously test positive.

 

Rapids do have a high failure rate so don't let anyone tell you it's reliable, even for the adults. My husband has had false negative rapids before.

 

I was told today that it would be wise to get everyone who lives here swabbed, cultured, and titers pulled on all.

Ugghhh, I am so overwhelmed right now.

Share this post


Link to post
Share on other sites

We recently had some of our extended family members tested because my children consistently react when around them. Everyone cultured negative and but several family members had extremely high ASO titers in the 700 and 800 range. They are completely asymptomatic. We showed the results to two doctors - 1 neurologist and 1 immunologist who both felt that they are either strep carriers or have a chronic strep infection that has not been cleared.

Edited by Debbie1

Share this post


Link to post
Share on other sites

Way before this whole thing began with my son, I was the one who always got strep - evry 3-4 months for about a year and a half. (Had strep prior times, but not as often/recurrent) Got amoxcil each time I cultured positive and was good for a few more months. Then an ENT told me I had allergies causing a post nasal drip, tonsils infecting, and gave me Levaquin for 10 days. After that, strep stopped but my next infection many months later was a sinus infection. I've since had some of those, maybe strep again (?) but not nearly as often anymore.

 

Not sure what my bloods are, but would be curious to have them drawn.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now



  • Announcements

    • Administrator



      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator



      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic
×