Stephanie2 Posted January 24, 2011 Report Share Posted January 24, 2011 I chose not to go the route of igenex testing b/c from what I read on these forums, unless it lights up like a christmas tree, there is so much left up to interpretation and then there is follow-up testing to see if it's "really positive" and then follow-up testing to see what co-infections may be present, etc. DH and discussed all this at length and decided it makes better sense to just consult with a lyme doc, tell him/her our symptoms and let the doc decide which tests to run, if any, or just go ahead and start treating based on symptoms and see what we get. I think I ran this scenario by this or the pandas board already and the concensus was that this is a good course of action. So, in reading this forum and talking to others it seems like I am best to go with Dr. Beals or Debbie McCabe in the same practice. Here are my question: *will they be ok with me going there without prior testing? *how do I know which one to go with? (McCabe is apparently a DAN doctor which is good b/c we have already been with 3 DAN docs so she would be familiar with our current protocol). *should I do our first consult over the phone so they can order testing or should I just load up the family and bring both boys (and myabe have an appt for myself as well). * do they do follow up appts on the phone? Link to comment Share on other sites More sharing options...
dcmom Posted January 24, 2011 Report Share Posted January 24, 2011 I will be interested in the answers as we have our first appt with Beals on 2/9. We did Igenex, and I am hoping that will be enough for now- kids (and I) are tired of tests, and well, tired. I know we cannot due the bicillin injections, as one ddvis most likely allergic, and the other has major needle fear. Link to comment Share on other sites More sharing options...
JTs-Mom Posted January 24, 2011 Report Share Posted January 24, 2011 I'm pretty sure Debbie McCabe isn't an MD. Reading her bio on the NIHA website (http://www.nihadc.com/practitioners/deborah-mccabe.html), I'm not even sure if she's an ND. Looks like she was recently fined by the State Board of Maryland for 'practicing medicine without a license'. http://www.mbp.state.md.us/forms/sep10sanctions.pdf Not trying to discourage anyone from seeing Dr. B or Debbie. I just think everyone should be informed about the credentials and background of the practitioners they are seeing. I do like the idea that Dr. B is willing to take the "let's try it and see what happens" approach. Sometimes I think that's what it takes. Link to comment Share on other sites More sharing options...
momofgirls Posted January 25, 2011 Report Share Posted January 25, 2011 Stephanie Yeah! Just go. Secretly many of us lyme moms were hoping you would take this next step. I really think it will help. Kim I chose not to go the route of igenex testing b/c from what I read on these forums, unless it lights up like a christmas tree, there is so much left up to interpretation and then there is follow-up testing to see if it's "really positive" and then follow-up testing to see what co-infections may be present, etc. DH and discussed all this at length and decided it makes better sense to just consult with a lyme doc, tell him/her our symptoms and let the doc decide which tests to run, if any, or just go ahead and start treating based on symptoms and see what we get. I think I ran this scenario by this or the pandas board already and the concensus was that this is a good course of action. So, in reading this forum and talking to others it seems like I am best to go with Dr. Beals or Debbie McCabe in the same practice. Here are my question: *will they be ok with me going there without prior testing? *how do I know which one to go with? (McCabe is apparently a DAN doctor which is good b/c we have already been with 3 DAN docs so she would be familiar with our current protocol). *should I do our first consult over the phone so they can order testing or should I just load up the family and bring both boys (and myabe have an appt for myself as well). * do they do follow up appts on the phone? Link to comment Share on other sites More sharing options...
dcmom Posted January 25, 2011 Report Share Posted January 25, 2011 I have to admit I am a little nervous about the cases.... If anyone has another option without a 6 mos wait and a $1000 charge (x2 kids).....in the NE..... Please pm me. Link to comment Share on other sites More sharing options...
lyme_mom Posted January 25, 2011 Report Share Posted January 25, 2011 Debbie is supposed to be excellent but she is a nurse , not an md. Go see Beals and u will know after one appt if u would like to work w him. He treats symptoms not test results so u r fine going w out anlot of tests.0 Link to comment Share on other sites More sharing options...
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