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Posted

Looks like we're headed into another PANDAS episode. Last night Als had a bad meltdown like hasn't happened in a couple of months. Then this morning I'm told she injured a school employee with a headbutt to their face. (anybody who works with Allie should know to keep their face out of range, but they probably weren't expecting it because it hasn't happened in quite awhile.) Then this evening she's totally O/C with her toys, "placing" them and fixating and getting herself all upset...and the whiney crying.

I think somebody at school must have strep. Her teacher says no, but I'll bet she was exposed...oh, well, nothin I can do about that.

So, I'm upping her abx for a few days, and will try to schedule her IVIG a week early. She just had a course of prednisone at the beginning of December, so I probably can't do that again for awhile.

Hope I can get her back out of this quickly.

Posted

Oh Peg, I am so very sorry. I know I am talking to an expert, but don't forget the Motrin. Sometimes when it has been a while, I forget the basics. First 48 hours, I even wake her up to be sure she has it in her. Keeping the inflammation from getting out of control seems to help us.

 

I guess this really drives home the difference. Praying that she comes out quickly. Glad you upped the abx.

 

Hope you are ok. That sounds so insufficient.

Posted

Its official. She wet the bed last night and got up about 3 AM to obsess over her obsessive stuff. Just started charting at the beginning of January. I guess this will give us a good idea how well that works.

 

Yeah, motrin and valium. Thanks for the prayers- that's sufficient!

Posted

So sorry, Peg. :( This stinks, but hopefully the increase in abx and your other additions (ibuprofen, valium) will keep it in relative check.

 

Yeah, Stephanie, I, too, think of January as Strep Month. It's maddening! :angry:

Posted

Wow, y'all have some powerful prayers!!

Yesterday was a bit better, mostly I think, because I kept her pretty doped up. But, also, I doubled her CLO and added Kirkman's Yeast Aid when I noticed all the ingredients are not just yeast fighter's but anti-microbials as well. Today, she only needed one dose of ibuprofen and one dose of valium. She's doing much, much better! Still lots of OCD, but a lot less anxiety over it, and hyperness in reduced as well. Thank God!

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