Interpreting Cunningham tests

[jackieann]

I have my daughter's tests from Dr. Cunningham, but we haven't yet had an explanation of them by my daughter's Doctor. Back story- three-day onset of violent tics Dec 2008, did not respond to 15 day steroid burst. Treated as TS until I saw Saving Sammy. No response to Augmentin 2000mg taken for the past three months. (Dr. said it wouldn't hurt to try it...) Any help in interpreting these is most welcome. It's so hard to wait for the Dr. to call!

 

Cam Kinase II 167

Anti-Lysoganglioside 320

Anti-Tubulin 1000

Anti-Dopamine 1 1000

Anti-Dopamine 2 16000

[eljomom]

My dd had very similar results and sudden onset of tics---she had had some ocd for a couple years prior. Didn't know about pandas, so didn't think to link to the MANY illnesses she had. A couple tics this spring after pneumonia (tested neg. to myco p), and then after a high fever, sudden onset of over a dozen tics, head to toe, which are still present (with ocd, sep. anx, hyper, etc....)

 

Our results:

Cam K 168

Anti-lyso 320

anti-tubulin 500

anti-dopa 1 4000

anti-dopa 2 4000

 

According to Cunnningham, the Cam K is in the high (med-high) pandas range, "but we dont' know what that means" and the anti lyso was double the mean, which she said was high, as well as the anti-dopa 1, which was 4 times the mean. Looking at your numbers, your anti-lyso and Cam K are the same, your anti-tubulin is at the high end of range, and almost double the mean, and your anti-d2 is at the high end of the range as well, 3 times the mean. Again, even Cunningham, as of last I spoke with her (a month or so ago) will say "we don't really know what this means yet"---but I know she is collecting data on symptoms and results to get a better picture.

 

I think P. Mom might know more....P.Mom???

[peglem]

Your antiD2 is very high! And camK is well w/in PANDAS range.

[jackieann]

Does anyone know if taking SSRI's impacts the test results? My dd takes zoloft.

[peglem]

Does anyone know if taking SSRI's impacts the test results? My dd takes zoloft.

I don't know if this has been studied officially, but a while ago, Buster was doing one of his famous data charts and seems like he observed that those on SSRIs had elevated antiD2. I'd forgotten about that. I wonder if Dr.C or Kathy Alvarez have any data on that?