DS2 went exorcist on me last night!

[Stephanie2]

So there you have it, I've been trying so hard to figure out if I should put the boys on augmentin (due to my sore throat, ds2's "cold" and increased pandas symptoms in both boys). Luckily I did fill it during the day b/c when my in-laws dropped off ds2 last night he went completely nuts the second they came through the door. They were shocked, jaws dropped, etc. They tried to get him under control for me, and I let them just so they could see "you can't control pandas, my friends". Plus his sep anxiety was so high he only wanted to be held by me.

 

I told them he had strep and you could tell they did not believe me. They watched me start his antibiotic and I told them (big knock on wood here) with the utmost of confidence in my voice "he will be a different child when you see him again on Thursday". They do not believe me, they are baffled, they started lecturing me about needing to find a "top neurologist" yada yada. They said he had been good all day with them, and now that he is home with me he is a mess. i told them that is how pandas works in my boys. They do not want to fall apart with others, only mommy and daddy. Further making me look "to blame" I suppose. But they will see on Thursday when they drop him off at my house again that he will not react that way and maybe they will then give me the slightest bit of respect for knowing what I am doing.

 

Needless to say, pandas is 70% better today :-) and even ds6, who I did not think had strep yet, woke up better than I had seen him in a long time (he was slightly clingy and emotional last night so I started his augmentin, too).

[butterflymom]

=

Edited February 2, 2016 by tampicc

[peglem]

I remember times (God forgive me) when I'd prepare my daughter for dr. appointments by making sure she was hungry and had no ibuprofen so the docs could see what I was talking about. Just describing it does not suffice usually.

[Stephanie2]

I remember times (God forgive me) when I'd prepare my daughter for dr. appointments by making sure she was hungry and had no ibuprofen so the docs could see what I was talking about. Just describing it does not suffice usually.

 

I hear you, believe me there are times, and I'm still tempted to do it, when I am tempted to pull everything: supps, meds, diet, just so I can bring my boys to a "top neuro" or "psychologist" to get all the dx's we need to get some respect and support from our families. But the simple fact is that it would not be pretty, their immune systems would bottom out (which would probably help us get IVIG covered...hmmmm) and they would go completely psycho on us without clostridia/yeast/strep under control. DH and I have talked about doing this many times, but we will not put our boys through that just to prove to family that we know what we are doing. They can go stick it!! LOL! Now, proving to the docs is a whole nother concept that I completely agree with. Gotta do what you gotta do to get your daughter help.

[peglem]

We have a wonderful pediatrician. But early on, I told him what this was like and when we had appointments she would do little things like smack herself in the head and he would ask, "Is that what you mean?" But that stuff was so slight compared to the really bad stuff, that it wasn't even on my radar. Once she had a real episode in front of him- well, it made a big difference- he went from being helpful to being militantly helpful!

[browneyesmom]

Oh dear, Stephanie... I'm not sure where to begin! I'm not sure if I'm more sorry that this happened and your family endured yet another episode... or if I am glad that your in-laws finally saw one!

 

Peggy, regarding the 'just describing it does not suffice usually'... so many times, I felt the same way. Then, in the ER just before her admission to the hospital the week of Christmas.... she had an episode complete with rage, gutteral tone saying she was going to kill, flailing uncontrolled movements, went limp and aphasia followed by baby talk & regression before returning to normal (in that order, just as I had been describing) - it took me, my husband, an ER nurse and two paramedics to control and restrain her. Next time we saw our pediatrician (who has believed me all along & is the one who diagnosed her), he mentioned that he read the report and the ER staff was 'impressed' with what they saw. Ha! Yeah, I bet they were! See, I'm not really a hypochondriac or Munchhausen by proxy mom.

[Stephanie2]

Oh dear, Stephanie... I'm not sure where to begin! I'm not sure if I'm more sorry that this happened and your family endured yet another episode... or if I am glad that your in-laws finally saw one!

 

Peggy, regarding the 'just describing it does not suffice usually'... so many times, I felt the same way. Then, in the ER just before her admission to the hospital the week of Christmas.... she had an episode complete with rage, gutteral tone saying she was going to kill, flailing uncontrolled movements, went limp and aphasia followed by baby talk & regression before returning to normal (in that order, just as I had been describing) - it took me, my husband, an ER nurse and two paramedics to control and restrain her. Next time we saw our pediatrician (who has believed me all along & is the one who diagnosed her), he mentioned that he read the report and the ER staff was 'impressed' with what they saw. Ha! Yeah, I bet they were! See, I'm not really a hypochondriac or Munchhausen by proxy mom.

 

Wow, I'm "impressed", too!! What a way to put it! Did ya tell them, welcome to PANDAS?

[browneyesmom]

lol... bless you and thank you, Stephanie, for making me smile today when I so needed it!! I forgot to mention that the ER nurse she had that night attends our church and one of the two paramedics lives about 5-6 houses away from us... lol... no, I did not... decided to just let them take it ALLLLL in on their own.