pandas mom Posted January 15, 2011 Report Share Posted January 15, 2011 Hi! First time writing here. When my daughter became sick, I found this forum. I had difficulty reading posts because I could feel the pain in every thread. We are all getting stronger now, so I figured it's time to connect with other parents. My daughter has a long ride to school, so we listen to books on CD. Last week we listened to "A Bad Case of Stripes" by David Shannon. I quietly cried while listening to it. I'd never read the book before, but it was a PANDAS story wrapped up in a children's book. So, maybe our kids don't get better overnight with lima beans:) but some things really do help. I thought it might be a helpful tool for those who have to explain this story to young kids. Thanks to all who put their hearts into this forum. I've been quietly watching for a while. Time to have a voice, I guess. Link to comment Share on other sites More sharing options...
Kbossman1 Posted January 15, 2011 Report Share Posted January 15, 2011 So glad that you decided to post....I'll have to see if I can find that book. Thanks for the tip! Link to comment Share on other sites More sharing options...
SSS Posted January 15, 2011 Report Share Posted January 15, 2011 (edited) The irony in my life right now is unbelievable. Oh, I am very familiar with this book, but I had NO idea it had to do with PANDAS. This is the book my dd5 got read to in preschool last year, and FREAKED. For 3 long months, she obsessed, with horried OCD thoughts turning into fears that ruled her world, that stripes were going to come onto her, and they would never leave. It literally tormented her. We are still afraid to speak of anything striped in this house. She started kindergarten this year. Saw the teacher had the 'Stripe' book- on her own (yea) she whispered to her K teacher 'Could you please remove that book?? It frightens me!' (And wonderful teacher did) I am awaiting our CAM results, day 8 of first time Azith., and now you are telling me 'The Case of Stripes' book is about PANDAS?? WHOAAAAAAA. Sarah & Samantha 5 Edited January 15, 2011 by S & S Link to comment Share on other sites More sharing options...
NancyD Posted January 15, 2011 Report Share Posted January 15, 2011 Oh my gosh --I never realized this. I remember reading this WONDERFUL book to my DD's kindergarten class 9 years ago. Link to comment Share on other sites More sharing options...
SSS Posted January 15, 2011 Report Share Posted January 15, 2011 Oh, sorry, I wasn't trying to imply it is not a great book (very popular!) Just the absolute irony in our story----- Link to comment Share on other sites More sharing options...
EmersonAilidh Posted January 15, 2011 Report Share Posted January 15, 2011 I'm not sure if she's saying it's actually about P.A.N.D.A.S. or if it just applies. Link to comment Share on other sites More sharing options...
pandas mom Posted January 15, 2011 Author Report Share Posted January 15, 2011 I'm not sure if she's saying it's actually about P.A.N.D.A.S. or if it just applies. Link to comment Share on other sites More sharing options...
pandas mom Posted January 15, 2011 Author Report Share Posted January 15, 2011 Sorry for confusion. It just seemed metaphorical. The poking and prodding and crying and fear and eventually- health. Would be nice, though, if magic lima beans existed:) Nice to connect with you all- Link to comment Share on other sites More sharing options...
JAG10 Posted January 15, 2011 Report Share Posted January 15, 2011 You can apply the book to PANDAS, but it isn't actually intended to be about PANDAS. The moral of the story is to be true to yourself; don't avoid things you like because most others don't have similar tastes or interests, you will turn yourself inside out, upside down denying who you are on other people's suggestion. Instead of trying to describe the inside hurt the author made the character morph into other people's suggestions on the outside. It is a wonderful book, unless your child fixates on the literal transformations (Yikes, sorry!) It is one of my younger one's favorites and I too get choked up reading the ridiculous list of doctor's that couldn't help her. Harness the hurt into determination. Link to comment Share on other sites More sharing options...
SarahJane Posted January 15, 2011 Report Share Posted January 15, 2011 I like this story too because it's about accepting yourself for who you are. When you have a quirky kid, books like these come in handy. I can see the PANDAS interpretation. The author wrote the "No David!" books too...now there's a literary character with PANDAS. Link to comment Share on other sites More sharing options...
browneyesmom Posted January 15, 2011 Report Share Posted January 15, 2011 lol! No David! - what an awesome book - she is much older than the probably intended audience for this book, but I may have to get it for her anyway! I have been wondering about writing a children's book for a while & sometimes, my DD11 and I talk about it. I think it would be so helpful for them to understand what is happening to them, that they are not alone & perhaps reduce some of the fear for them. Link to comment Share on other sites More sharing options...
airial95 Posted January 17, 2011 Report Share Posted January 17, 2011 I'll have to pick up those books for my son. We've struggled because he's only 3, but very advanced for his age, but even so, some of the children's books about OCD are over his head. In the fall, I started writing a childrens book about PANDAS, to try to help them understand what's going on with their bodies and minds. It's still a work in progress, and ironically I just picked it back up for the first time since the holidays this past weekend! Link to comment Share on other sites More sharing options...
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