philamom Posted January 9, 2011 Report Share Posted January 9, 2011 (edited) My daughter started taking Tindamax on the weekends only, the end of September. The first three weekends, she herxed with it, then the next two weekends I only saw improvement, without herxing. We then did our 4th ivig, backslid, and saw no difference on it for a couple of weeks. Now when she takes it...she herxs Saturday evening, Sunday, and a little Monday morning...but then I see great improvement. I can't tell if I love this antibiotic, or hate it. Edited January 9, 2011 by philamom Link to comment Share on other sites More sharing options...
sf_mom Posted January 9, 2011 Report Share Posted January 9, 2011 Trust me.... you will soon love it. It was an awful experience for me initially. Remember I had to be bumped down in daily dosage. Now, I am hitting a stride with it and feel much, much better. She'll get there and the herx will be less and less over time. -Wendy Link to comment Share on other sites More sharing options...
lyme_mom Posted January 9, 2011 Report Share Posted January 9, 2011 My daughter started taking Tindamax on the weekends only, the end of September. The first three weekends, she herxed with it, then the next two weekends I only saw improvement, without herxing. We then did our 4th ivig, backslid, and saw no difference on it for a couple of weeks. Now when she takes it...she herxs Saturday evening, Sunday, and a little Monday morning...but then I see great improvement. I can't tell if I love this antibiotic, or hate it. Thats pretty funny. I hated watching what it did to my son herx wise but I think it got him well. Link to comment Share on other sites More sharing options...
Iowadawn Posted January 10, 2011 Report Share Posted January 10, 2011 I am afraid to ask what the herxing looked like on Tindamax.....Dawn Link to comment Share on other sites More sharing options...
NancyD Posted January 10, 2011 Report Share Posted January 10, 2011 My daughter started Tindamax daily in the beginning for a month and that was too much for her so we are now pulsing it 3x a week with Azith 4x a week. Now the herxing isn't so bad. I find on the days she takes Tindamax she is much moodier. Bentonite seems to help with diarrhea and herxing. Link to comment Share on other sites More sharing options...
philamom Posted January 11, 2011 Author Report Share Posted January 11, 2011 This weekend's cycle ended with a twist. She had usual moodiness along with a wicked headache and some increased anxiety. She didn't make it into school Monday until after lunch. In the evening she told me her ears hurt, so I took a peek and the back of her earrings were embedded into her skin. After being unable to remove them, I was advised to take her to the ER. She handled it well! Her biggest fear was having to get a shot (4 ivig's and bloodwork every 2 months and she still has that fear - go figure). It was a quick visit...I think the longest part was giving her medical history and mentioning all the medicines she's on. Today we begin the love-part of the cycle. She got up and couldn't wait to go to school and brag about her experience. Yes, a love-hate relationship! Link to comment Share on other sites More sharing options...
PacificMama Posted January 11, 2011 Report Share Posted January 11, 2011 Tindamax can be a whopper. But it does get better and better and better each cycle. But even if you get to a point where you do not see the obvious reactions you do now, just know that it may still cause her to feel a bit more "raw" or sensitive on the days she takes it. Link to comment Share on other sites More sharing options...
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