NewBeginnings Posted November 2, 2010 Report Share Posted November 2, 2010 I'd like some advice and opinions from other Lyme moms about flu season. I have heard conflicting reports on whether or not to get a flu shot. One LLMD said to get it and another said absolutely not. I'd like to know what your Dr's have said and also if you have any tips for getting through flu season while battling Lyme. Thanks! Link to comment Share on other sites More sharing options...
NancyD Posted November 2, 2010 Report Share Posted November 2, 2010 Our doctor says NO VACCINES of any kind, not even tetanus. I'd like some advice and opinions from other Lyme moms about flu season. I have heard conflicting reports on whether or not to get a flu shot. One LLMD said to get it and another said absolutely not. I'd like to know what your Dr's have said and also if you have any tips for getting through flu season while battling Lyme. Thanks! Link to comment Share on other sites More sharing options...
lyme_mom Posted November 2, 2010 Report Share Posted November 2, 2010 I'd like some advice and opinions from other Lyme moms about flu season. I have heard conflicting reports on whether or not to get a flu shot. One LLMD said to get it and another said absolutely not. I'd like to know what your Dr's have said and also if you have any tips for getting through flu season while battling Lyme. Thanks! My llmd says absolutely not. We have never got flu shots fortunately. I always thought it was so strange that we would need them b/c I never had them growing up. My llmd says that ten years of flu shots will triple your chances of getting alzheimer's b/c of the mercury in the shots. I have also been told that the flu vaccine is usually a different strain than what ends up going around so it is questionnable whether it really works. My llmd says that especially kids with asthma should NOT get the flu vaccine. There are a number of things you can do to prevent the flu. Most importantly get d levels checked (25 hydroxy test) and supplement if levels are not over 50, ideally closer to 100. My llmd says that low d is associated with 6 forms of cancer and heart disease and the flu. If you feel the flu coming you can take 10 times the daily dose of d for several days to help fight the flu. We did this plus we used chinese herbs and tea that my acupuncturist prescribed. I would find a good acupuncturist rather than get the flu shot. That way you know where to go if the kids start getting sick. My daughter is nine years old and love acupuncture. My older two do not but they will take the tea and the herbs. Acupuncturists/chinese medicine doctors can work wonders if you start to feel sick. I will try and find more info that my llmd hands out about how to prevent the flu and I will post it. Link to comment Share on other sites More sharing options...
NancyD Posted November 3, 2010 Report Share Posted November 3, 2010 This I find VERY interesting, Lyme Mom. Once I got my DD's D levels up to 45 from "7" (what Dr. L called catastrophic levels) she stopped getting one skin infection after another. She is now taking 1000 mg daily of vitamin D3. But I wonder if this is not enough. She was taking 50,000 IUs per weeks for a few months and that really pushed her levels up. I wonder if she should go back on that for a few more months. We just redid her levels the other day and we see her DAN doctor in two weeks so I will check on this. And my levels are nowhere near 100. Think I will start focusing more on vitamin D for both of us! Most importantly get d levels checked (25 hydroxy test) and supplement if levels are not over 50, ideally closer to 100. My llmd says that low d is associated with 6 forms of cancer and heart disease and the flu. Link to comment Share on other sites More sharing options...
sf_mom Posted November 3, 2010 Report Share Posted November 3, 2010 Our Dr. said no Vaccines too! Link to comment Share on other sites More sharing options...
lyme_mom Posted November 3, 2010 Report Share Posted November 3, 2010 This I find VERY interesting, Lyme Mom. Once I got my DD's D levels up to 45 from "7" (what Dr. L called catastrophic levels) she stopped getting one skin infection after another. She is now taking 1000 mg daily of vitamin D3. But I wonder if this is not enough. She was taking 50,000 IUs per weeks for a few months and that really pushed her levels up. I wonder if she should go back on that for a few more months. We just redid her levels the other day and we see her DAN doctor in two weeks so I will check on this. And my levels are nowhere near 100. Think I will start focusing more on vitamin D for both of us! Most importantly get d levels checked (25 hydroxy test) and supplement if levels are not over 50, ideally closer to 100. My llmd says that low d is associated with 6 forms of cancer and heart disease and the flu. I tWOw 7 is catastrophic. I think my kids were in the 20s. One thing my llmd said was that the prescription version of 50,000 d is not what he would recommend. He said that it does not raise levels fast enough. Might not be all d3 but also d2. My lllmd sells xymogen D3 but you can probably buy any d3 from a place like whole foods and be fine. I think the highest dose you can buy is 5,000 ius of D3. My llmd had my kids take 5k ius in the winter to raise levels and 2k ius in the other months to raise levels. My kids were 8 to 12 (60 to 85 lbs). If levels are good I think 2k is good in the winter and maybe 1 k in the other months or an equal weekly dose. Since d is fat soluble it matters how much you take in a week, not so much each day I am told. So if levels are ok then you could give one 5k a week, for example. Link to comment Share on other sites More sharing options...
NancyD Posted November 3, 2010 Report Share Posted November 3, 2010 We actually did get D3 as I had it compounded for my DD. It's the only way you can get 50,000 dye-free. In fact, we have to compound most of her medication. The 1000 D supplements I get from our DAN doctor are also D3. I think we need to up it for both of us. I'll go over that with our DAN doctor in two weeks. I know he will want to add some other supplements now that she is diagnosed with LD. WOw 7 is catastrophic. I think my kids were in the 20s. One thing my llmd said was that the prescription version of 50,000 d is not what he would recommend. He said that it does not raise levels fast enough. Might not be all d3 but also d2. My lllmd sells xymogen D3 but you can probably buy any d3 from a place like whole foods and be fine. I think the highest dose you can buy is 5,000 ius of D3. My llmd had my kids take 5k ius in the winter to raise levels and 2k ius in the other months to raise levels. My kids were 8 to 12 (60 to 85 lbs). If levels are good I think 2k is good in the winter and maybe 1 k in the other months or an equal weekly dose. Since d is fat soluble it matters how much you take in a week, not so much each day I am told. So if levels are ok then you could give one 5k a week, for example. Link to comment Share on other sites More sharing options...
NewBeginnings Posted November 3, 2010 Author Report Share Posted November 3, 2010 I'd like some advice and opinions from other Lyme moms about flu season. I have heard conflicting reports on whether or not to get a flu shot. One LLMD said to get it and another said absolutely not. I'd like to know what your Dr's have said and also if you have any tips for getting through flu season while battling Lyme. Thanks! My llmd says absolutely not. We have never got flu shots fortunately. I always thought it was so strange that we would need them b/c I never had them growing up. My llmd says that ten years of flu shots will triple your chances of getting alzheimer's b/c of the mercury in the shots. I have also been told that the flu vaccine is usually a different strain than what ends up going around so it is questionnable whether it really works. My llmd says that especially kids with asthma should NOT get the flu vaccine. There are a number of things you can do to prevent the flu. Most importantly get d levels checked (25 hydroxy test) and supplement if levels are not over 50, ideally closer to 100. My llmd says that low d is associated with 6 forms of cancer and heart disease and the flu. If you feel the flu coming you can take 10 times the daily dose of d for several days to help fight the flu. We did this plus we used chinese herbs and tea that my acupuncturist prescribed. I would find a good acupuncturist rather than get the flu shot. That way you know where to go if the kids start getting sick. My daughter is nine years old and love acupuncture. My older two do not but they will take the tea and the herbs. Acupuncturists/chinese medicine doctors can work wonders if you start to feel sick. I will try and find more info that my llmd hands out about how to prevent the flu and I will post it. Wow....thank you for the information. I have not had his levels checked and will be sure to do so. Thanks! Link to comment Share on other sites More sharing options...
Suzan Posted November 4, 2010 Report Share Posted November 4, 2010 Our LLMD just told me no way for the flu shot too. s Link to comment Share on other sites More sharing options...
NewBeginnings Posted November 4, 2010 Author Report Share Posted November 4, 2010 Thanks everyone for your responses. I appreciate it! Link to comment Share on other sites More sharing options...
cobbiemommy Posted November 4, 2010 Report Share Posted November 4, 2010 Three different docs said NO to any shots/immunizations! Two were LLMD and one was Dr. K. Link to comment Share on other sites More sharing options...
Fixit Posted February 13, 2011 Report Share Posted February 13, 2011 Are any of you getting notes from your doctors or just signing some sort of waiver...conflict of religion? Link to comment Share on other sites More sharing options...
Suzan Posted February 13, 2011 Report Share Posted February 13, 2011 Are any of you getting notes from your doctors or just signing some sort of waiver...conflict of religion? Ours are not mandatory, at least they weren't last year. Are people finding they are required? s Link to comment Share on other sites More sharing options...
justinekno Posted February 13, 2011 Report Share Posted February 13, 2011 (edited) We got three no's - our pediatrician, integrative dr, and LLMD (wow, we have alot of dr's!) regarding the vaccine. We have not run into flu vaccines being mandated here. We also do Vitamins D & C and wash hands ALOT. We try to eat alot of fruit and vegis, exercise daily and avoid late nights. I'd like some advice and opinions from other Lyme moms about flu season. I have heard conflicting reports on whether or not to get a flu shot. One LLMD said to get it and another said absolutely not. I'd like to know what your Dr's have said and also if you have any tips for getting through flu season while battling Lyme. Thanks! Edited February 13, 2011 by justinekno Link to comment Share on other sites More sharing options...
Fixit Posted February 13, 2011 Report Share Posted February 13, 2011 Big note came from school saying children will not be given schedule until immunization recards are updated! I am calling tomorrow to find out details....i am just pOed with all this and still trying to get 504..especailly since ramp up and he needs to pass crct to go to 6th grade... tic level is high 1 week post bicillin and aug..from a level 2ish to 6 maybe 7 Link to comment Share on other sites More sharing options...
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