SarahJane Posted October 29, 2010 Report Share Posted October 29, 2010 Just wondering how many of our kids fall under the gifted category (or advanced). This would be whether or not you've done formal testing or not...maybe you just suspect your child is gifted/advanced. Dr. K's phenotype mentions that many PANDAS children usually have early speech development & usually (prior to the illness) excel in school, particularly math & sciences. Our ds(6) knew his alphabet by 2 (NOT just by rote recitation--could put jumbled letters in order) & was spelling/reading by 2.5 (words like "elephant"). His first words were around 9 months, but he did have a speech delay that he outgrew by around 4.5 (did therapy, OT, etc...). We did WPSIII testing when he was 4.75 & his verbal scores were thought to be underestimated (wouldn't always cooperate with tests), but his processing was above average, performance was at 99th percentile, general language was at 98% percentile. His full scale IQ was at 94th percentile BUT was affected by his lower verbal score...so it too would have been underestimated. His reading was 4 standard deviations above the mean (age was 4.75 & he was able to read on 2nd grade level w/ mid-1st grade comprehension). His math scores were also advanced for his age. His memory is remarkable. The IQ testing was done when he was so young because we kept facing development questions during what I think were mild exacerbations since I suspect early onset (when I was totally in the dark that PANDAS even existed). We did formal ASD evaluations after DOCTORS started questioning his development at 2.5 (2 months after his 1st ear infection & in reaction to our concern about speech delay), & in the evaluations, we were told no autism but speech delay & the questions still kept resurfacing. The episodes would last about a month (we thought they were growth spurts) & then he'd seem so much better & we'd wonder what we were worried about. Sometimes the episodes did coincide with an illness, but I didn't make the connection until I reviewed his medical file. Once I got the "gifted" term, it explained a lot of the behaviors we'd see, and we had 1.5 yrs without questions (right after his tonsillectomy--adenoids were taken out separately back when he was almost 3). We even thought that giftedness was part of the school issues we had back in the spring when the 1st major exacerbation started. I do still think his giftedness was at play, but PANDAS was the cause. We did a questionnaire on ASD this past spring when ds's behavior changed & school was so affected, and were told that while ds showed some ASD behaviors, he did NOT meet the DSM-IV criteria. We did receive an anxiety dx. Now, we do have the PANDAS dx from Dr. K, & IVIG is next month. Link to comment Share on other sites More sharing options...
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