2 week Post HD IVIG-Neuro symptoms

[nevergiveup]

Igg levels maintained at a level of 1900 or 2000 or 2100 need to measure trough levels to determine which level eliminates symptoms. My docs treat serious immune defs, autoimmune disease, looking into issues like epilepsy, pitands, lupus, chrohns, autism, all with high igg level dosage of ivig, seeing lots of promise. Experimental in dosage and protocol not in the use of ivig. Ivig is used in all these illnesses for a while. Just trying to establish effective measurable dosage. Not to mention help some very sick children whom have extremely debilitating diseases and whoms meds normally used have more serious side effects than ivig.

[JAG10]

For your dd, has your doctor been using the 1.5 g/kg ....or a lower dose but more often? How often?

You can PM me if you're not comfortable putting this all out there.

[Healingthedude]

I think she meant to say IgG levels maintained at 1900

 

When your doc tests all the IgG subclasses for their levels in your blood

you will see these numbers.

 

If they are out of range that could indicate immunodeficiency.

[nevergiveup]

Minimize side effects while maintaining high levels of immunoglobins. So high dose frequently, she will get about 1.0 to 1.2 grams every 21 days once we are finally ramped up. She receives increases in doses once she has adjusted to previous dose with no side effects. (No headache or fatigue whatsoever)

[Fixit]

Minimize side effects while maintaining high levels of immunoglobins. So high dose frequently, she will get about 1.0 to 1.2 grams every 21 days once we are finally ramped up. She receives increases in doses once she has adjusted to previous dose with no side effects. (No headache or fatigue whatsoever)

 

can i ask...

are you seeing results...

are you trending in the right direction....

is there saw tooth with this???

maybe it's too soon to give an update???

thanks ...sorry if i'm making you repeat yourself, i don't recall if you've mentioned any of this ...