Anyone have a Lyme 504? & who to do coinfection testing through..

[EmersonAilidh]

Oddly enough, I wasn't the one to bring it up or ask about it, my counselor at school was the one to offer it yesterday. It's more for when I'm going to have to travel for doctors, but I just wanted to see if anyone else had school accommodations for Lyme. I ask because while it's easy to think of the problems, it's pretty difficult to think of solutions (even if temporary ones) for them. He's an extremely understanding man (fairly sure that he's knew & the public school system has yet to break him), & I was just wondering if anyone had suggestions or experiences with what has worked/hasn't worked for their kids. Thank you all in advance! <3

 

Also, are co/secondary infection tests as inaccurate & unreliable as Lyme testing?? Are they run through LabCorp or Quest, & are they even worth running if they are? Or is this something that you just need to go straight to IgeNeX for? I read about the LymeTAP financial assistance today, & that would make IgeNeX a MUCH better possibility. It would be nice to just get the whole battery done (Anaplasma, Mycoplasma IGM, Ehrlichiosis, Bartonella, Babesia, whatever else...) at once, but is that at all possible? I have a general physician who is very on board with all of this so getting someone to sign off on the tests wouldn't be a problem, I'm just wondering how difficult it would be to actually GET them. Keep in mind that I'm in Texas, where (debatably) Leprosy is preferable to Lyme. -___-

 

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Also!

Anaplamsa doesn't have to present as pneumonia, right?? I can't find much about that question online but that was my understanding after reading Cure Unknown. A nurse at some doctor's office said otherwise on the phone though. Confused now.

Edited October 21, 2010 by EmersonAilidh

[PacificMama]

Hi Emerson,

 

Perhaps you will someone who has experience here on this board, but I can tell you that getting IEP plans for lyme is done all the time. Perhaps not where you are, though. Here is a link to lots of support materials for lyme in the schools.

http://www.lymediseaseassociation.org/index.php?option=com_content&view=category&id=12&Itemid=147

 

You can always post on lymenet, as there are lots of experienced parents there who would have done this and can walk you through the process.

 

Regarding coinfections, testing is typically done at a variety of labs. The llmd's know best who they like to use for what. And this may be different in different parts of the country. Since you are just going to use your general physician, you again might make a post on lymenet looking for a fellow Texan to perhaps offer an opinion.

 

And hopefully someone who has recently run the co tests here will chime in with at least some general suggestions, and lab choices. I know that during the ILADS presentations that were broadcast last week, some of the docs put their typical tests and lab reccomendations out there.