Priscilla Posted September 16, 2010 Report Share Posted September 16, 2010 Ok, I want to throw this out there for some thoughts. I am really having trouble w/ the long term abx thing. My dd was already on isoniazide for a year of her life for a + TB test. Now, first started tx w/ omnicef went very well, after trying to wean a few times I thought we built a resistance b/c it seemed to stop working, around this time, my dd developed alot of blotchy uneven pigment on back and shoulders and what looked like ringworm on legs. I knew this corresponded w/ increase in abx so my thought is its fungal (ped said no, its eczema) treated legs w/ lotrimin, went away (he was wrong AGAIN!) stopped abx, blotchiness went away.. Long story short from on and off experience with abx, we know the blotchiness is a fungal/yeast issue. So it seems when she has the blotchiness, abx seem less effective for PANDAS/PITAND behaviours. We are also on nystatin and probiotics with a pretty strict diet. I am certain we are dealing more with PITAND from our history. So I am thinking this abundance of yeast/fungal presents as an infection to her immune system and may be impeding our progress (we are seeing SLOW progress post 2 HD IVIG) Her naturopath said her gut was a mess months ago, we seemed to help that improve w/ supplements and diet but we are now trying to minimize giving her too many pills each day. I am afraid we may start slipping d/t yeast/fungal issues. I strongly believe she has no existing bacterial infection so I am thinking about aborting the abx and giving her GI system time to recover. We still have 2 more IVIG scheduled. Any thougths, experiences Link to comment Share on other sites More sharing options...
kimballot Posted September 16, 2010 Report Share Posted September 16, 2010 (edited) Hi - We've had good luck with diflucan for fungus, though I know you cannot be on it long term. It is more systemic than nystatin, so it may address more than just the gut. Edited September 16, 2010 by kimballot Link to comment Share on other sites More sharing options...
Fixit Posted September 16, 2010 Report Share Posted September 16, 2010 i don't have an answer...but right now i believe that is our problem too.. and i think any abx over time can give you clostridia...and that is another bacteria for ds that triggers pandas...besides yeast and fungus.... IT'S GREAT FUN Link to comment Share on other sites More sharing options...
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