Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010

Search the Community

Showing results for tags 'vitamin d'.

More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


  • Welcome to our Forums
  • ACN Services
  • Advanced, Complementary, and Alternative Approaches
    • Attention Deficit Disorders
    • Autism Spectrum Disorders
    • Obsessive Compulsive Disorder
    • PANS / PANDAS (Lyme included)
    • Tourette Syndrome and Tics
  • Prevention and Integrative Therapies
    • Cognitive Behavior Therapy (New)
    • Diet and Gastrointestinal Issues (New)
    • Environmental Factors (New)
    • Nutrition and Supplements (New)
  • School and Home Related
    • Academic Challenges
    • Behavioral Issues and Behavior Charts (New)
    • Educational Plans (New)
  • General


  • ACN Latitudes Blog
  • sarama37's Blog
  • kptrsn's Blog
  • lulu648's Blog


There are no results to display.

Found 2 results

  1. Have any of you heard about the Coimbra protocol for MS and other autoimmune diseases? I'm considering trying it for PANS. https://www.coimbraprotocol.com Basically, it's extremely high doses of daily vitamin D: ~50,000 IU or more, along with some other supplements and close monitoring by a doctor. The premise is that people with autoimmune disease cannot properly absorb and make use of Vitamin D, so they need mega doses just for their bodies to be able to do what healthy people's do with more "reasonable" amounts of Vitamin D. Apparently Vitamin D boosts the immune system while suppressing autoimmunity--exactly what we PANS people need! My PANS doc was talking about moving on to Rituxan, but my LLMD says that's a bad idea with Bartonella still present. I've done multiple rounds of IVIG which haven't cured me, so that's off the table. My Lyme/co antibiotics kicked up the inflammation so much that I had a full-blown PANS relapse and have had to do weekly steroid infusions--which are only a band-aid. Basically, Vitamin D seems to be my best option at this point while I continue to treat Lyme/co. Unlike Rituxan, Vitamin D is supposed to boost the immune system and probably help me fight off the infections while knocking down the autoimmunity. I've never heard of anyone doing this protocol for PANS, but it's supposed to have 95% success rate for putting people with MS into remission (another neurological autoimmune disease). I'm always skeptical of anything that claims as much, but Dr. Coimbra isn't trying to sell anyone anything, and he lets other doctors come train with him free-of charge. I'm reassured that it doesn't seem like he's trying to take advantage of anyone. And there are thousands of people around the world who have had success with this for MS, RA, Crohn's, Sjogren's, and other autoimmune diseases. What do you think? Have you heard of this protocol before? Would you try it?
  2. Searching through the archives of the forum, it seems that many, many of you have reported that Vitamin D causes issues/backsliding for your kids. Tell me about your experiences: Did anyone stick with it and eventually see a good result? Did ramping up the dosage slowly help? Did anyone have a good experience from the get-go? Was there a combination of vitamins that worked to mellow the crazy? Did you find another way to get your child's levels up? Backstory: My kid came down with PANDAS in October of 2013 and is mostly recovering. (I wrote about his story a bit here.) We recently added Vayarin to his regimen of fish oil, 5HTP, vitamin c and probiotics. Adding Vayarin seemed to make a HUGE difference. The past two weeks or so have been really great--normal, even. His doctor recently tested his vitamin D levels and said they were low. (28 on a scale of 33-100, but many folks will say you are really shooting for around 50.) He recommended we supplement with 1,000 IU a day but...oh my. This has certainly put an end to the recent good run we were having. Thoughts how on I can up his Vitamin D levels without ruining our family's quality of life?