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  1. Hi 🙂 I get PMs from so many members who are desperately looking for guidance on this challenging journey to help their children. Apart from being able to share some of my personal experience, and to suggest searching the many helpful threads members have posted here over the years..... I cannot think of a better #1 resource than everything that is on the ACN/Latitudes homepage at https://latitudes.org/ I found the original Latitudes magazine many years ago as a desperate mom seeking answers to help my then 10 yo son, who was diagnosed with genetic Tourette Syndrome with very
  2. Hi, My 4.5 year old son has suddenly developed tics. We dont have any family history as far as I know, and it is breaking my heart. It first started with nose itching and now that is gone and he either claps or runs around and claps. We have seen numerous neurologists and the diagnosis has been the same- transient tics. We had an EEG done and it was normal. The only advice I got from most is to wait and see. That is not my style. I have started reading the book on how to deal with tics in a natural way, started a 1 month electronics fast and now working on reducing sugar. My friend, who i
  3. Hello - I 'm new and reading Natural Treatments for Ts & Ts. I am finally finding people whose experiences are like ours. My 12 yo has terrible tics. I believe meds are making them worse. Can anyone tell me how long the washout period is and what might help the demonic behaviors that go along with it? I realize I need to find some allergic / food triggers first before I try to convince the dr. Thank you.
  4. I've been dealing with tics since my childhood. I am 24 years old. I've tried tons of methods. I've found 2 good ways by myself to reduce tics. I have Neck moving right and left, breath out many times loudly and tighten my legs etc. So I've tried to push tics away, not responding any pressure any tics but made worse and then I've tried to direct my tics. Let me explain with my poor english. First tip; My goal is reducing "visibility". Because i'm tired stopping tics completely. When I feel the pressure to "breath out or neck moving"(more visible tics) i tighten my legs(less vi
  5. Hi all, my 10 year old daughter started having facial ticks a few weeks ago in the summer holidays apparently triggered by screentime. She moves her eyes to one side, opening them wide and head moves in the opposite direction to eyes - says her eyes feel like they need to stretch. We had a screen detox and the tic went away but has now come back apparently triggered by anxiety and an panic attack (first one ever). The eye thing started again and so arrived some facial twitching and excessive eye blinking. I've now found she also has an abdominal one where she moves her legs towards her an
  6. Hi everyone I have been reading the posts here for almost a year now, which has been so helpful in many different ways. I finally found the courage to post and share our story. I will really appreciate the input of those who have had similar experiences. I have a 5-year-old daughter who developed tics around May 2018. Prior to that, I do not remember her having any tics, compulsions or repeated behavior of any sort. I will try to keep it brief. She had chickenpox in April 2018. Looking back, she started facial grimacing, touching cars, getting upset because she had to be the o
  7. So I haven't been on this board in a long time. Why? Because my two PANDAS are doing so great it is not a "thing" anymore. But I wanted to come back and offer hope and encouragement because most people on the boards are struggling and the success stories are off the boards living their lives. I have a (now 18 year old) who began with PANDAS/aspergers symptoms as a toddler. It got very bad- tics, ocd, hallucinations when he had strep, and absolutely zero social skills or awareness. What we did: turned out we had major mold in our house and did complete mold remediation. He was on Aug
  8. Has anyone tried tichelper.com yet? Interested to see if it's helping people. Thank you!
  9. Hi everyone, I am almost 25 and just got diagnosed with PANDAS a couple months ago. When I was six, I had Sydenham’s chorea and was put on prophylactic penicillin, which I continued taking until age 22. For the past few years I have been having increasingly bad symptoms and finally just found out that I have also had PANDAS the entire time. I also scored very high on the Cunningham Panel. Unfortunately, IV steroids made me worse, and the treatment recommended to me is rituximab, which I do not want to do. I feel like I need to figure out the root cause of why I am having an autoimmune problem.
  10. lulu648

    Touretic OCD

    Has anyone out there heard of Tourettic OCD? I just heard the term today for the first time. Any info appreciated! Thanks!
  11. I have been taking some immune boosters, antivirals, and antifungals for sometime now and notice reduce in tics. However, my thoughts become more scattered and quite frankly psychotic. I get anxious and my personality becomes rather dull when I take them. This has led me to the assumption that I do not have Tourette’s, but rather PANS. What are your experience with immune boosters or immunomodulators? Does it relieve tics at least? Would you have any idea why it may cause psychotic symptoms? I was thinking increased brain inflammation. Does it mean it’s helping rid of the infection causin
  12. Hello, I'm 17 years old. Over the past month or two I've noticed some what I believe is tic's. It started when touching a certain part of my body (my nose) caused a tic where my arms would not have any control and my hands would curl into almost like a first involuntarily. That has been going on for about 5 months. Until the last few months they are coming without touching my nose, they come in attacks or "tic attacks". Lasting about 30 min and then they stop. My tic attacks involve my arms almost "flailing" to put into a sense but not as bad, they never extend fully. my head will twitch and t
  13. To give little history, I've been diagnosed with schizoaffective disorder, which is simply explained as bipolar and schizophrenia together. I've also had tics all my life, mostly blinking, and some OCD. Whenever I take immune boosting supplements my general feel of psychosis and irritability increases, and so does my tics. Any idea as to why? And I'm open to any recommendations on how fixing it. That's it for my question. Below are some indications for those that have the ability to do detective works. Olive leaf extract: gives me energy and temporarily cures tics. Often cause
  14. Hi! im New here. My 9 yo son was diagnosed with minor tics a few weeks ago. It started in November. Head twitch and throat clearing. This week face grimace added. Neurologist said he would probably grow out of it. Went to ND and did a food sensitivities test. We are waiting on results. Have started GF diet for now but hoping for more info when get food sensitivities test back. Did Epsom salt bath this week but 2nd day he had a bit of a rash on his back so stopped that. Will try Nature Calm this weekend. I started charting food this week. I’m feeling overwhelmed and saddened that i
  15. Looking for a doctor for my son with tics who is 11. I KNOW it can be controlled with diet and sleep, but my husband does not believe me. I have stopped my son's tics 4 different times over the last 4 years when I was able to help him eat clean and get solid sleep. Looking for a doctor to confirm and do food intolerance testing if possible to show my husband proof. Also, just need a professional that has worked with this, so my husband will believe that it is true and not something that is just made up. Thank you! Anyone else having trouble convincing a spouse? Any suggestions?
  16. For those of you who have tried LDI for strep - what has been your post LDI experience - does your child still get strep infections? if yes, how do they react to these infections - do they get regular strep symptoms (minus flare)? Do you see their immune system fighting these infections? My worry is that if i get my child "sensitized" to strep, his body is going to ignore strep as an antigen - his defenses are going to be lowered as a result of the sensitization. Hope this makes sense.
  17. Hi, I am new to this forum and looking for some guidance and support in regards to my 8-year old son. About 2 years ago (Fall 2012) my son had his adenoids removed (because of constant sinus infections). It helped tremendously. But a few weeks after his surgery, he started clearing his throat quite often. I attributed it to residual irritation from the surgery and the ENT told me that was probably the case. The throat clearing stopped after about 3 months. Then he started with what I can best describe as eye-widening for no reason. I actually called the ENT and asked if that was no
  18. Hello - have you all heard of and considered Low Dose Immunotherapy (LDI) for your children. There is a very nice YouTube video of Dr Ty explaining the use of LDI for lyme/pandas. He is a very convincing speaker and we are going to talk to him. Wanted to know if you have any feedback for us.
  19. Hi! I'm so, so happy that I found this forum. Just picked up the Natural Treatment for Tics & Tourettes book a few days ago and I'm so glad I did. I am the mother of a 15 month girl, and absolutely frightened because she is exhibiting multiple motor tics. This all started on January 29th, the same day she learned to walk. I was video taping her to show my folks that she was eating with her fork and noticed she did a few odd head jerks. I caught it on video and showed my parents and husband that day but all anyone was focused on was the amazing miracle of our little one walking o
  20. My 7 year old developed a head jerk tic a day after falling at school (not sure if related) X-rays were clear . I showed his GP a video of this head jerk and he said it’s behavoural just ignore it will go away. It’s been so hard for me to accept that this is happening. I recently had a baby who is colicky nd cries a lot so that’s one change that’s happened. I have noticed that he has become more sensitive and moody since this tic started he sometimes says things like no one loves me Anymore. Other people don’t seem to notice the tic and I’ve been told I’m overreacting, my husband d
  21. My son was diagnosed with transient tic disorder around his 4 yo birthday. He repetitively clears his throat, sniffs, and blinks his eyes funny. I have had him allergy tested and found no environmental allergies and just a few food intolerances - none of which were severe. He is moderately allergic to nuts and wheat. He does not eat nuts and we are working on getting wheat out of his diet which is very difficult! He has a short list of foods that he is mildly allergic to and I have not even begun to eliminate those from his diet yet. I treated his first bout of tics (he's had two now) wi
  22. I should start by saying that is an amazing site. I always feel that I am alone on my anti-pharmaceutical island. My 6 year old was recently diagnosed with Tourettes. I feel like I was left dangling by the pediatrician without any directions on how to proceed. I have an appointment with our nurse practitioner as I want to do blood work to see if there any nutritional deficiencies. Without guidance from a doctor (we dont have a doctor as I didnt vaccinate my children), I need help. What type of nutritional deficiencies should I make sure to test for? Are there any other
  23. My son (11 w/sever autism) has been treated for PANs for two years with antibiotics by an immunologist at MGH. Recently his symptoms worsened with increased anxiety, ocd, aggression, and a new tic disorder. Can anyone recommend doctors in New England who could treat a child like my son? We're feeling quite desperate. Thanks!
  24. Hello to all of the incredible parents and caregivers on this forum. I am new here and found this forum through extensive google searches, which always brought me back here and to several of you who have posted extremely helpful information. I cannot than you enough for sharing your stories. My 5.5 YO son has TS, vocal and motor tics for a year. We have followed similar diets (GF/DF/Nut Free) to many of you here and he also has severe tree nut allergies with anaphylaxis, which seems to be a common thread with TS kids (allergies/OCD/ADHD). We've been on a quest for the past year to fi
  25. My 16 year old ds has had tics for many years. Most tics include bending his neck sometimes just a quick bend forward but other times he uses his hand to really push his neck down and when standing he sometimes has to bend over. He also stretches his feet. I believe he has some ADHD, too. He had started driving and has been ticcing. My concern is the safety part. While the tic is brief, he is taking his eyes off the road. Any advice from those out there who have gone through this would be greatly appreciated. I know I can't stop the tics but what can I do? San
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