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I know there is a Facebook support page for PANDAS/PANS, but are there any in-person support groups or “Meet Ups” for PANDAS/PANS in the Chicago area? My DS 13 had his first major onset of PANDAS at 8 years old after a dental appointment (although we now believe his first onset was at 14 months old when he stopped eating solid food after a virus). We struggled for years to get a diagnosis and treatment. I would love to share information with other parents, regarding treatment, and how to recover from the trauma and years lost to this disorder.
cozican posted a topic in PANS / PANDAS (Lyme included)Hi guys - I’m new on here. My 10yo son was diagnosed with PANDAS 7 months ago. What a whirlwind. I was just wondering if there were any support groups in North Brisbane (Australia) or in the general Brisbane area? Thx Cath 🙂