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**Approved by Forum Admin** Parents and Carers Needed to Participate in Research Study! Do you have a child aged between 5 and 12 years with a PANS/ PANDAS diagnosis and currently live in either Australia, UK, USA, Canada, Ireland or New Zealand? Researchers at the University of Newcastle, Australia, are researching the impact that PANS/ PANDAS flares has on a child’s participation in daily life activities. If you are interested in finding out more or participating, please click on the following link: https://is.gd/PANS_Study. We encourage you to invite other families you know, who
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This just came across my FB feed today, and I thought it was interesting: http://medicures.org/british-researchers-may-have-just-found-the-cure-for-multiple-sclerosis/ By synthesizing proteins from the sheaths in a lab and then injecting them into the blood stream at increasing doses, the body begins to learn that they are safe and no longer attacks them. This type of therapy has already been used in treating some allergies, a treatment that is called allgergic desensitisation, but its only recently that scientists have thought it had potential to be used elsewhere. In auto
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My DS actually found this via one of his favorite web sites. Fascinating, and hopefully will bring something additional to the table for those of us who already live in a world in which the relationship between the brain and inflammation is well-accepted rather than "controversial." http://mentalfloss.com/article/65435/scientists-discover-new-part-human-body This find is the neuroimmunological version of stumbling across a unicorn. Not only had the system gone undiscovered until now, but textbooks argued against its very existence. As a result, neuroimmunologists have struggled to und
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Hello, There is an article in the Fall 2015 issue of the trade magazine "Biosupply Trends" that summarizes PANDAS/PANS/CANS and provides highlights of some small studies that looked at efficacy of tonsil/adenoid removal versus antibiotic treatment. Interesting. Jump to page 48. http://www.bstquarterly.com/emagazine/currentissue/
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I'm noticing a lot more postings of research articles and papers recently. I think this is a good sign that the medical community is starting to 'loosen up'. Here's one about narcolepsy but with lots of references to what we all talk about all the time on these boards... http://protomag.com/articles/betrayal-within
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Really good read! http://thewalrus.ca/a-feverish-debate/
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