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Please help. We are on our 2nd round with Pandas and now Lyme co-infections with my DS(23). Twelve years ago he responded beautifully to abx. This time he has not responded to abx or to one round of IVIG (no response at 8 weeks). He has treated yeast successfully, mycoplasma and H pylori successfully, no active strep or viruses, although ASOs still high 400s and Dnase B at 300. Babesia duncani at 40, and possibly some bartonella - although no symptoms for any lyme or co-infections. Physically he is the picture of health. His symptoms as an adult are invisible but still debilitating - ex
Guest posted a topic in PANS / PANDAS (Lyme included)We were supposed to leave Florida monday and see Dr. N tuesday but the receptionist just called and said we have to see a "Dr. Derek Chong". He has good ratings online and 3 very good reviews, but I don't know anything about him. Any advice would be welcome. My mom can't reschedule everything, she works full time as R.N. in busy hospital. WE have rented a loft as well. Can't say I'm not disappointed. He is board certified in neurology, psychiatry, and sleep medicine, which is GOOD. Can anyone give any advice in dealing with this situation? One time I was supposed to see a