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New to this...
hkp901 posted a topic in PANS / PANDAS (Lyme included)We are testing for Strep today. My son is starting to hate needles. Is there anything else I should test him for (like Lyme) at the same time to eliminate the need to come back and draw blood again. He throws a temper tantrum which is not good for all his tics and stress levels. I am new to this. I am reading "Childhood Interrupted". It has been eye-opening. I just realized what the possible situation was last night and I am overwhelmed to say the least. Any referrals or advice is appreciated. Thanks. Heidi
Red flags in labs - not sure what's going on.
Guest posted a topic in PANS / PANDAS (Lyme included)I don't have a doctor treating me right now and am getting drastically sicker by the month. I can't hardly sleep at all even taking tons of downers but I am severely fatigued, mostly in my brain with chronic migraines. Anyways here are some things I noticed going through recent labs (within the past year): Elevated DNase (224) but normal ASO. High titers to all: Coxsackie A and B (valtrex did nothing to improve that) high titers to Myco. Pneumonia (doctor never addressed this) high titers to parvo IgG4 - low IgA2 - low Basophils - absent IgG p41 - present (western blot) IgM P39 - present (western blot) Very low NK cell count Low B cells Low NK cell activity / functioning B12 - too high (surprising) There's a lot going on with my cytokines but I cannot decipher any of that. My psych. is referring me to a neurologist who knows about neuro-inflammation so it's just me waiting to see if I am accepted. Also, right now my throat is extremely soar all the time and my mom checked my tonsils and said they were extremely huge and inflamed. Any thoughts on the labs? Thanks.