Jump to content
ACN Latitudes Forums

Search the Community

Showing results for tags 'how do we garner more researc'.

The search index is currently processing. Current results may not be complete.
  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Welcome to our Forums
  • ACN Services
  • Advanced, Complementary, and Alternative Approaches
    • PANS / PANDAS (Lyme included)
    • Tourette Syndrome and Tics
    • Attention Deficit Disorders
    • Autism Spectrum Disorders
    • Obsessive Compulsive Disorder
  • School and Home Related
    • Academic Challenges
  • General

Blogs

  • ACN Latitudes Blog
  • sarama37's Blog
  • kptrsn's Blog
  • lulu648's Blog

Product Groups

  • Advertisements
  • Test Category

Calendars

There are no results to display.


Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Joined

  • Start

    End


Group


AIM


MSN


Website URL


ICQ


Yahoo


Jabber


Skype


Location


Interests

Found 1 result

  1. How often have we heard that we need more research? We have a handful of clinicians mostly - and a few "true" researchers - working on pans and pandas. I think most compelling research has come from or is in the works from: Cunninghams, Swedo, Hornig, and Agalliu. I've spent number of hours over the past few days on the Broad Institute Website, as well as the The McGovern Institute site. PANS and Pandas not mentioned anywhere. There are millions in research dollars here and hundreds (thousands) of researchers looking at aspects of biological functions that are implicated in the PANS hypothesis. Genetics, Immunology, Neurology, and Psychiatry. http://www.broadinstitute.org http://www.broadinstitute.org/psych http://mcgovern.mit.edu/about-the-institute Broad is focused largely, but not entirely, on genetics. The Stanley Institute and McGovern Institute are focused more on the Brain and Psychiatric conditions. But of course, there's overlap between all of them. The Director at Stanley Center for Psychiatric Research (part of Broad) is Steven Hyman, who was previously Director of NIMH (must know of heard of Swedo...) It seems to me the fastest way to get some research done and leverage existing resources, would be to take some conventions, tests, (etc) that have already been developed and either test some pandas specimens or apply a pandas convention. Much the way that Drittan Aggaliu did. He developed a technique to evaluate the BBB in mice for stroke victims. That's is basically his life's work. Somehow he became interested in pandas. He induced repeated strep infection to see what might happen to the tight junction of the BBB in mice - to see if the same thing that happens after a stroke (tight junctions fail)- might happen with repeated strep infection. He did this because for him - and all the researchers - a big part of the PANDAS hypothesis "broke down" when it cam the BBB. The antibodies are too large to cross it. He had already spent years of his life developing the technique to look at the BBB in live mice. Pandas gave him something else to look at beside stroke. A relatively small investment in time leveraging many years of research. Still waiting for results and a paper on it, but looks like very promising research, from an unlikely source. How do we garner more interest like this? Theres money and grants that exist for this research. We need some researchers to become interested, or their directors to direct some investigation of pans/pandas using their techniques. Maybe a start would be having some pans/pandas researchers attend or present at some meetings. Sept 9, 203 they are hosting one called Symposium on the Emerging Genetics and Neurobiology of Severe Mental Illness. There are a large number of videos and summaries from last year here:http://www.broadinstitute.org/scientific-community/science/programs/psychiatric-disease/symposium/2011/symposium-emerging-genetics Anyone have any experience in the medical research field - have any "in's" - with either the Broad Institute or another similar research program? Suggestions??? I don't know if the Sept 9th is open to non-med, but Im thinking of going if it is.
×
×
  • Create New...