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Cardiologist said he doesn't think it has anything to do with infection, even though I pushed, and pushed and pushed. Wouldn't even consider testing. Said that there's no evidence on the heart. I even asked our PCP, and pointed out that we had been told for years that my kids didn't have PANDAS, even though it turned out that they did (plus a whole lot of other infections, too.) I am especially concerned, because bartonella can cause the aortic and mitral valves to fail, and he had to stop abx tx early 2 years ago, because he developed c-diff (so I pulled him off the abx, and overall, he seemed to be doing ok.) But, now his functionally bicuspid aortic valve (should be tricuspid, but apparently a congenital defect), which only had a mild leak as late as 2 years ago) is now a moderate/severe leak, and needs to be replaced as soon as possible! Anyone know anything about the following test for bartonella? http://www.galaxydx.com/web/human-health/faqs/ I want to insist that they test, because he doesn't need a new valve failing. We are all reeling, and it's very scary.
