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Found 5 results

  1. Hi All, I'm new here and I'm wondering if anyone else has come across these types of tics, and could it be related to PANDAS/PANS? I guess I'll give the rundown of our situation for background. My daughter started having tics at age 12. They started after she was really sick (sore throat, headache etc)for a week, but she was negative for strep. Our other daughter was sick in hospital(hindsight possible pandas/pain processing disorder) and I didn't do a good job of paying attention to other daughter. She spent a lot of time in her room and we noticed her doing things but we thought it wa
  2. Anybody else's kid start with a dx of PANDAS at a young age and now meets criteria for TS? My son was dx with PANDAS at 2-3, after a months-long strep infection that refused to die until we had done 3 different oral abx, abx shots, and a tonsillectomy. Classic sudden-onset tics, OCD, anorexia, crazy behavior. We thought he was growing out of it (less frequent episodes, with less extreme behavior.) But now he's 8, and his (mild) tics have been present on and off for about a year, and in hindsight I've realized that what is likely AD/HD started creeping in last fall (yet to get an official
  3. Hi everyone. I've had TS + since I was 6 and I am now 43. I've tried every medication under the sun and now my tics are worse than ever. My OCD incorporates itself into my TS where I don't do the counting thing, but instead the 'how it feels/pain' thing. I am suffering from tremendous pain as well as so frustrated that I can't stop that I'm beside myself. I've just recently discovered that food as well as other things like chemicals, etc could be make tics worse. My allergist has tested me for trees, wasps and bee's. The only food testing that was done was on crab and lobster, though.
  4. I'm from the UK and am pretty certain my 9 year old daughter has TS but has not been diagnosed officially. More than 6 months ago now she had what I can only describe as a complete meltdown. She had huge anxiety, couldn't be separated from us, didn't go to school for 3 weeks, had rages, complete moments of irrationality and at the worst point was so exhausted she would fall asleep in the day. We had her at the doctors more than once, thought she was hypoglyceamic etc etc. at the same time she developed a blinking tic and I realised she had a throat clearing and sort of gulping tic for a while.
  5. Hi Everyone. So glad I found this forum. My son's first tic started when he was around 5 - he is 9 now. There are many contributing factors that could have triggered the onset. We suffered from longterm exposure to carbon monoxide and after 7 mos. of the exposure - right before we found out we were being poisoned - his tic started. He also had swine flu and tamiflu months before...so who knows..it was all too much on him. We've both suffered lifelong damages from the exposure - but it's too much to explain here. His tics used to happen every 6 mos. in the beginning after the first one - last a
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