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  1. I should start by saying that is an amazing site. I always feel that I am alone on my anti-pharmaceutical island. My 6 year old was recently diagnosed with Tourettes. I feel like I was left dangling by the pediatrician without any directions on how to proceed. I have an appointment with our nurse practitioner as I want to do blood work to see if there any nutritional deficiencies. Without guidance from a doctor (we dont have a doctor as I didnt vaccinate my children), I need help. What type of nutritional deficiencies should I make sure to test for? Are there any other
  2. Hi, I'm glad I found this forum, seems like a very resourceful forum, so I'm hoping that I can get my questions answered. A bit about myself - I'm a 39 year-old male, diagnosed with TS around 7-8 years old. I have taken meds like haldol and catapress (sp?) and both turned me into a vegetable, as I kept falling asleep, and couldn't focus too well. Since about 11, I stopped taking meds altogether, and my symptoms have been a bit of roller coaster ever since. My main symptoms are facial tics, muscle tensing in the neck and shoulders, forced breathing, and repeating words and/or action
  3. http://vipbrainfitness.com/wp-content/uploads/Kaplan-Treatment-of-mood-liability-and-explosive-rage-with-minerals-and-vitamins.pdf I know this study was done in 2002 but I use several of the supplements mentioned in this study with my son. Thought the article might be helpful to someone else.
  4. Hi. I was told to post here, so I thought it would be best to just repost what I did in the tic/Tourettes forum. Hope that's okay: Posted Yesterday, 08:48 PM First, I want to thank Sheila and the staff for their amazing web site/forums and incredibly helpful book. I am so glad I found these amazing resources!! Please excuse the long post, but it's been a long story.... But it is: My 8 y.o. son started ticcing when he was 4--mildly, no one really noticed but me. Then, they went away within month or two. When he was 6, they came back. He started ticcing more regularly but still
  5. Hi, folks, We saw a lot of OCD relief when my ds14 went on ibuprofen. Many others report the same. We are beginning to try pterostilbene supplements. There are a few companies out there who have them. VERY powerful bioavailable natural anti=inflammatory. I don't use this company with the link below, full disclosure. But this is a nice summary. http://www.pteropure.com/ptero/index.html I would also call attention to the work of Harvard's David Sinclair and NAD as possibly helpful. Much of the work on the cells that age and reducing this aging process can have applications in o
  6. First, I want to thank Sheila and the staff for their amazing web site/forums and incredibly helpful book. I am so glad I found these amazing resources!! Please excuse the long post, but it's been a long story.... But it is: My 8 y.o. son started ticcing when he was 4--mildly, no one really noticed but me. Then, they went away within month or two. When he was 6, they came back. He started ticcing more regularly but still mildly and intermittent. In March of 2015 at the age of 7, his tics became so bad it was completely dramatic. Happened two weeks after having an ear infection and being di
  7. Hoping someone here can help me with vetting this company? Sending DS off this summer for three weeks . . . and then hopefully college in a year . . . and staring down the barrel of how do we handle all these supplements? What teenager/college kid is going to take a dozen pills each day without being reminded? So I thought I'd see if I could find a place that would make a custom "multi-vitamin" for us that would contain only those substances we KNOW work well for DS, without any of the extras found in standard multi-vitamins. Found this company and did a little trial "build" of our c
  8. We see Dr. B in NY. He recommends lots of supplements, I am on board with strengthening his immune system. However, I am at a total loss for how to get him to take all the supplements. He's a picky eater anyways. He is dairy free, and right now, this is his first PANDAS episode he is not eating well. Sneaking it into food isn't working well, he will just say, this tastes bad! How do you get these great immune boosters and inflammation reducers into the kids. He is only 4.5 years old. Thanks for your advice! Also would love advice on how to get started on GF or Yeast Free diet….feeling overwh
  9. My son has been having a rough time with viruses the last several months. I know there are many herbal and natural supplements that can help keep this under control. He does take vitamin C with rose hips and a citrus bioflavonoid complex and L-lysine 1000mg. I was wondering if there was just something better that I could give that would provide a better defense against viruses. For some reason his body picks them up very easily. He has been in and out of the hospital for IVIG treatments which does not help this. Within a week to 10 days after being in the hospital, he seems to come down with a
  10. Has anyone tried using flaxseed oil as an anti-inflammatory? All I've read about it says it's a good one. I can't remember where I read that something in it may not be good for PANDAS kids - wow, that was vague. I wonder if I should try it...
  11. Hello everyone, I will be brief so you can read me without get bored. I am 22 years old, had been with OCD and motor tics from 8 years old approximately, this tics are all about crushing joints and jaw clenching (my social hidden tic) I live in a shitty comunist country, I am sure I know more about tics that doctors here I don't want to get drugs, I am convinced to fight this from a comprehensive way Supplements will be one of this ¿could you people help me with main and basics must I take? ( I will buy each one for separately because my country condition ) Thanks for all,
  12. I have been reading some old post on inflammation. I would like to know more about fish oil, bentoninte clay, oil of orgeno capsules, epicor, and mesosilver. How does is help your child with inflammation and pain. How much do you give if you feel comfortable giving out this information. Or you can pm me. My son has been living with daily pain ( headache, scalp, nerve pain). I do give him fish oil but not 3,6 ,or 9. In cooking, I use butter, olive oil, and coconut oil. My son has had the esr and cpr test and they are always in the normal range. However, recent testing indicates high Kynurenic a
  13. Hi everyone. I was wondering if there was a list of supplements or naturopathic treatments that people have used, whether with success or without. I've seen many discussions and signature lines with all the stuff people use and it's hard to keep track of them all. A comprehensive listing would be helpful. For example, what is NAC and how it is helpful? (I'm going to Google that now). I just put my DS9 (at 60lbs) on magnesium glycinate supplements (120mg), omega 3's (672 mg EPA to 168 mg DHA) and he's on probiotics. That's about it. Also thinking about going gluten free. Thanks f
  14. Hello all, I am fairly new here (but unfortunately not new to PANDAS) Tomorrow we will be giving my 9 y.o. (ADHD, ODD, OCD) son his first IVIG and I need a little hand holding/moral support. I am so nervous and would love to hear any success stories out there. Also, we have him on lots of supplements as well as 2 abx (Azithromycin and a Cephalasporin). I understand that a common side effect is naseau and vomiting. I am assuming that for the next several days we should hold off on supplements (even the ones that help with his huge YEAST problem from the abx??) Any thoughts here? Al
  15. Has anyone used Seroplus? It was suggested for my ds. I have not seen any reviews for it online and I am curious about others' experiences with this supplement. We were hoping it might help with irritability.
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