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Showing results for tags 'POTS'.
This just popped up in my feed via MentalFloss. New researching finding a genetic link between these three, "rare" but increasingly prevalent auto-immune conditions. Science marches on. http://mentalfloss.com/article/87506/one-gene-mutation-links-three-mysterious-debilitating-diseases
Just wanted to pop in and give everyone an update on my son. He was diagnosed with Postural Orthostatic Tachycardia Syndrome in October 2011. He was tested for Lyme and Co-Infections but never got a positive test on any bands. He tested positive for Basal Ganglia Antibodies in November 2013 but was never diagnosed with PANS/PANDAS because he did not meet the NIH criteria. However, my son did get treated for these antibodies by his cardiologist because they were making his POTS symptoms worse. He was treated first with antibiotics, then a few months of IVIG, and then had to go on a do Plasma Ex