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I received an email invitation to take an "educational" quiz about children's mental health from childmind.org. The quiz was interesting and can be found here http://quiz.childmind.org/ - and they say that if you take the quiz you earn $1 for children's mental health. I received the invitation from another PANS parent who is a member of this forum and a dear friend, so I am thinking some of you may also have received the same invitation. When I took the survey (which was clearly geared toward main-stream child psychiatry), I gave them my email address, and then I received a follow up thank-you email that stated: We have added you to our mailing list. Soon you'll be receiving email updates about the Speak Up for Kids campaign. Remember to join us online at childmindlorg/speakup in May for a month of live-streamed public education events and on-demand content from experts in the fields of mental health, neuroscience, education, public policy and advocacy. Ok - so I clicked around to see what they had to say about PANS - figuring that might be something I would want to talk about, and here is what I found: Under "myths about OCD" it says: You can get OCD from strep throat. Strep throat is associated with the development of temporary neuropsychiatric disorders that mimic OCD, but they're not OCD. The phenomenon is known as PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections), and occurs in rare instances when the body's immune system reacts to the strep infection by generating antibodies that, for whatever reason, attack the basal ganglia. This can result in a rapid onset of OCD symptoms. The good news is that these disorders are temporary and disappear quickly, lasting only until the strep throat is cured and the immune response is over. (http://www.childmind.org/en/myths-about-ocd/) Ok.. so is anyone out there interested in doing some SPEAKING UP about OUR kids in May?
